Showing posts with label Survivorship Conference. Show all posts
Showing posts with label Survivorship Conference. Show all posts

Tuesday, June 24, 2014

It’s All About the Guidelines - Cancer Survivorship Research Conference Part 3


One of the most informative plenary sessions was titled Guidelines/ Implementing Survivorship Care.  With the number of cancer survivors estimated to be 14 million  by the ACS the need to have guidelines for implementing survivorship care plans is important. There are four main guidelines each with a different audience.

LiveSTRONG
LiveSTRONG recommends a process for care called Essential Elements which can be used by everyone. http://www.livestrong.org/pdfs/3-0/Essential-Elements-Definitions_Recommendations

NCCN
NCCN guidelines cover:
Anxiety and Depression
Cognitive Function
 Exercise
Fatigue
 Immunizations and Infections
Pain
Sexual Function (female/male)
Sleep Disorders  
This guideline is written for the healthcare professional so a link for patients is unavailable.

ASCO
ASCO published the first of its Survivorship Guidelines in April of this year. They focus on Anxiety and Depression, Neuropathy, Fatigue and Fertility Preservation and are meant for healthcare providers. They can be found at http://www.asco.org/guidelines/survivorship

ACS
The audience for the ACS guidelines is the primary care physician. The first guideline is for prostate cancer can be found at http://www.cancer.org/cancer/news/news/longterm-care-guidelines-for-prostate-cancer-survivors . Additional guidelines will be developed for breast, colon, lung, cervical , ovarian , endometrial , uterine, head and neck and  melanoma.



After learning about these guidelines we heard a discussion of these plans by Julia Rowland, NCI and Doctors Ganz, Wender and Farber. They raised points about the challenges of implementing survivorship plans, the need to train PCPs regarding survivorship issues and the need for evidence based research to show whether or not patients with survivorship plans do in fact have better outcomes.


Dee
Every Day is a Blessing!

Monday, June 23, 2014

Sessions Older Cancer Survivors and Caregivers – Cancer Survivorship Research Conference Part 2


There were a number of concurrent sessions taking place at the Cancer Survivorship Research Conference so it was difficult for me to decide which ones to attend in person. I will share with you information from the Improving Health and Health care  of Older Americans and Caring for the Caregivers which I found most interesting. .

Improving Health and Healthcare of Older Americans

In this session I learned from Heidi Klein, MD that older Americans ( >65 years of age) was the largest group ( 53%) of cancer survivors. But they are also the group to which we know very little about.  Why? Older adults are underrepresented in clinical trials because many times the age group is ineligible due to the way many trial protocols are written. Currently,  researchers are unsure if the standard of care will apply for those >65 years of age. There is a relatively young specialty called Geriatric Oncology and a group specifically doing research in this area called the Cancer and Aging Research Group.

Dr Supriya Mohile spoke about using the Geriatric Assessment to aid in cancer treatment decision making and to predict which patients will experience acute toxicity of chemotherapy . The geriatric assessment includes functionality, physical performance, cognition, nutrition, social support , etc.  Dr Mohile stated that patients with cancer have had a higher prevalence of geriatric issues. There has been very little research on survivorship issues with the older adult. They do know that with chemotherapy older adults have more neuropathy which leads to more falls.

Dr. Ed McAuley spoke about physical activity interventions and that the median age of those diagnosed with cancer is 65 years. He also stated that only 10% of those 65 years of age and over are meeting physical activity guidelines. Many believe walking is enough but strength training is important too.  Physical activity also has an impact on cardiovascular function. In a study of breast cancer patients, researchers found that the more physical activity patients undertook the less fatigue the patients experienced and indirectly the less depression the patients felt.

Albert Sui , MD explained that longevity is increasing due to better public health, less smoking and cleaner water. With the longevity though come and increase in chronic conditions which cancer patients have to deal with. It was stated repeatedly that doctors need to consider comorbitity issues when treating older cancer patients. 

Caring for the Caregiver

This session began with a presentation by Sharon Manne, PhD discussing Coupled Focused Psychological Interventions for Cancer Patients. Cancer is a family and couple stressor. Her work compared support group interventions for couples( breast cancer dx)  versus an enhanced couple focus intervention. In this study, there was less work absenteeism (one outcome of the study) by the partner in the enhanced couple focused group. They also found the higher the stage at diagnosis the higher the spouse/ partner stress. In a study of prostate cancer patient/ couples, researchers found that the more the patient held back from discussing issues with their partner the lower levels of well-being the partner felt.  

Allison Applebaum, PhD from the Center for the Study of Cancer Caregivers at Memorial Sloan Kettering explained that cancer caregivers are also cancer survivors (NCI definition). Caregivers are at agreater risk for distress and have anxiety regarding recurrences even up to 5 years later so it is important that caregivers learn to manage their stress.

Patricia Griffiths, PhD a gerontologist  spoke about Caregiving Dyads. There is currently a dementia home tele-health model program used by the VA. Programs like this can be modified to reflect survivorship concerns and expanded to Google chats ( which I learned are HIPAA compliant).

Next up post - Survivorship Guidelines.

Dee Every Day is a Blessing!




Monday, April 7, 2014

Stay the Course

For the past two weeks time seems to have been flying by. We are having some painting done in our home so my normal routine and place I work on the computer has been disrupted.

Most of my time was spent reviewing grants/ proposals  for two organizations. Some of the proposals are on subjects other than cancer so I needed to take extra time to do the review. I am learning a tremendous amount though I still experience issues with remembering what I just read. If I read one proposal and wait till the next day to write my final review I have to go back and reread the information. Then my reviews were reviewed and suggestions for rewrites were send . Even with pages of notes that I took as I read about the research I still needed to reread ( now for a 3rd & 4th  time) the sections where changes were suggested.  A bit frustrating to say the least but I got through it all. I understand that if you  "exercise" your brain, the cognitive impairment - "Chemo brain" will get better.

If you are an advocate for cancer or diabetes or heart disease or autism or any health related issue look for opportunities to share your experience / knowledge as a grant reviewer. It is hard work but a great experience and many organizations are looking for the voice of the patient or caregiver in evaluating grant proposals.

I also worked on an application for a scholarship to the ASCO annual meeting in Chicago. Of course my brain tricked me again and I thought I had read I had till Thursday afternoon. So I thought I would just shoot it off after I came home from my port flush on Thursday. Well, when I went to the original packet of information to find the e-mail address to send the app to I read the time the app was due was 11:59 am . I missed the time by less than an hour. I was disappointed in myself but I figure I will try next year.

The good news is that my application to attend the Biennial Cancer Survivorship Research Conference in June was accepted. I am honored to be attending this conference in June and look forward to sharing what I learn on Twitter and this blog.

I did spend some time having fun too. I took part in a class last Monday my community held called  Art Journaling. What a fun time we had at this class taught by local artist and children's book author, Dar Hosta. I love to take the time to be creative.


Dar wrote about our class in her blog "Monday #33:Fun Shows"

So even though it has been busy and I don't post every day,  I "Stay the Course" and continue to share with all of you.

Dee
Every Day is a Blessing! Blessed to share time with my neighbors being creative.