March 2024
“Do it!” Gynecologic cancer clinical trial participants’ advice to others and perspectives presented during Poster Session two, SGO annual meeting 2024, with Annie Ellis, Adrienne Moore, Linda Ryan, Dorinda(Dee)Sparacio
September 2023
Alka Agrawal , Managing Partner
June 2023
My Experience at SGO, Presentation
Community Cancer Action Board Meeting, 6/13/23 Rutgers Cancer Institute of New Jersey / RWJ Barnabas Health
March 2023
June 2022
March 2022
July 2021
April 8, 2021
COSMO (The Collaboration for Outcomes using Social Media in Oncology)Conference Patient Engagement in Social Media:When the Doctor is No Longer the Expert panelist
July 2020
Antiemetics ASCO Guideline Update
Social media and gynecologic cancers: The impact of Twitter #GYNCSM.
Christina Lizaso, Dorinda Sparacio, Shannon Neville Westin, Richard Mark Boulay, Sarah Madhu Temkin
Publication Only: Care Delivery and Regulatory Policy Session
J Clin Oncol 38: 2020 (suppl; abstr e14113)
doi: 0.1200/JCO.2020.38.15_suppl.e14113
https://meetinglibrary.asco.org/record/187383/abstract
January 27, 2020
https://ascopubs.org/doi/full/10.1200/JCO.19.02960
January 10, 2020
Benefits and Support of Twitter Cancer Communities
NRG Oncology Semi-Annual Meeting, 1/10/2020
September 12, 2019
The Roads I Chose: Responding to Life with Ovarian
Cancer
Gynecologic Cancer Awareness Event, Rutgers Cancer Institute of New Jersey
June 28, 2019
Organizing Online Health Content: Developing Hashtag Collections
for Healthier Internet-Based People and Communities
JCO Clinical Informatics
https://ascopubs.org/doi/full/10.1200/CCI.18.00124
June 1, 2019
Fireside Chat: What Patients Want From Providers
ASCO Annual Meeting
with Dr Elizabeth Dickson
May 2019
We Can All Be Advocates
http://globeathon.com/blog/we-can-all-be-advocates/
October 2018
Caregiving Is a Marathon, Not a Road Race: Reenvisioning Caregiver Support Services in Gynecologic Oncology
International Journal of Gynecological Cancer:
https://journals.lww.com/ijgc/Abstract/2018/11000/Caregiving_Is_a_Marathon,_Not_a_Road_Race_.12.aspx
September 2018
ASCO Advocacy Champion 2018
July 2018
Mirrors and Windows
http://globeathon.com/blog/mirrors-and-windows/
April 2018
"The Needs of Women Treated for Ovarian Cancer: Results From a #gyncsm Twitter Chat"
The
Journal of Patient-Centered Research and Review
https://digitalrepository.aurorahealthcare.org/jpcrr/vol5/iss2/3/
December 7, 2017
Cancer Knowledge Network
#gyncsm Community - Participants are Key
October 2017
Antiemetics: American Society of Clinical Oncology Clinical Practice Guideline Update
Co-author, Journal of Clinical Oncology , October 2017
September 2017
ASCO Advocacy Champion 2017
September 18, 2017
Online Article
"Using Social Media for Health Care Support and Information"
AD-VO-CATE FOR MOM AND DAD
June 20, 2017
Presentation: "Support in 140 Characters"
Hunterdon Mercer Chronic Disease Coalition meeting
April 2017
Senator Menendez visits the Rutgers Cancer Institute of NJ
Speaking Out Against NIH Funding Cuts - a Patient Perspective
with Senator Menendez
March 2017
Graceful Hope 5th Annual Event - Guest Speaker
January 2017
SHARE Blog
A Bit of Advocate in All of Us
https://www.sharecancersupport.org/2017/01/a-bit-of-advocate-in-all-of-us/
October 2016
Ovarian Cancer Survivor's Summit, Lisbon Portugal
Patient Presentation: The Roads I Chose
February 2016
Cancer Hope Network Video
https://youtu.be/0rFxhHLPx9Q
December 16, 2015
Cancer Knowledge Network
A Twitter Community is Born...and Grows
https://cancerkn.com/a-twitter-community-for-those-impacted-by-gynecologic-cancer-is-born-and-grows/
A brief history of the #gyncsm (Gynecologic Cancer Social Media) Community.
October 20, 2015
Patient Summit 2015 Philadelphia, PA
Presenter:Building Community Using 140 Characters
Defined online patient communities, the development of healthcare hashtags and how online Twitter Cancer Communities support patients. Co-presenter: Alica Staley on the #bcsm Community.
October 17, 2015
Cancer Hope Network Chrysalis Gala
Featured Speaker
"I didn't feel alone." @womenofteal, sharing her story. pic.twitter.com/RwB5tjJfbk
— HopeNetMinute (@CancerHopeNet) October 18, 2015
September 2015 Co-Author with Dr Don Dizon of
100 Questions and Answers about Ovarian Cancer
Jones and Bartlett Learning
August 21, 2015
Cancer Hope Network Blog
Blog post:
7 years: Paying it Forward
July 20, 2015
Patient Empowerment Network
Blog post:
CancerLinQ for Oncology Data
September 2014
Stanford MedX e-patient scholar
IDEO Challenge participant
IDEO Panel member - Sunday Sept 7, 2014
http://youtu.be/-5PFxXsYZq0
Inside New Jersey Magazine interview
The Cancer Conundrum: Cases continue to increase, but Treatments and Prognosis are improving
Summer 2014 Issue
A Women's Health Magazine
Committed to Community
June 8, 2014
Rutgers Cancer Institute of New Jersey
Introducing the keynote speaker, Valisia LeKae
Survivors Day 2014 - 525,600 Reasons to Celebrate
May 2014
PCORI Blog- A Word from One of Our Patient Reviewers
https://www.pcori.org/blog/word-one-our-patient-reviewers
February 2014
SGO Issues -https://www.sgo.org/voices-winter-reflections/#more-12535
August 2013
Board Certified Pharmacist Video
May 3, 2013
Health Activist Panel: Increasing Adherence Through Patient-Centric Programs
10th Annual Patient Summit 2013, Philadelphia, Pa
Wego Health Speakers Bureau
April 2013
ASCO Post Article
It Takes A Village to Survive Ovarian Cancer by Dee Sparacio
March 6, 2013
Social Media for Pharma:A Match Made in Heaven or Hell
e-Pharma Summit, New York, NY
Wego Health Speakers Bureau
September 2012
Speech Telling My Story
Graceful Hope Dinner
Newark, NJ
March 2012
Presenter: Survivor to Survivor: Understanding Cancer Research
Cancer Support Community Central NJ
October 2011
Presenter: Reading Between the Lines
Cancer Support Community Central NJ
Fall 2011
Oncolyte - CINJ Newsletter
In Her Own Voice article
September 2010
Speech : My Story
Teal Wings of Hope Walk
Hamilton, NJ
October 2009
Healing with Compassion Video
Cancer Institute of New Jersey , Awards dinner
April 2009
Adding Teal in My Wardrobe presentation
Student Nurses
Seton Hall University
September 13, 2008
Good Day NY , Fox TV Interview with Dr Brown, MSK
January 2008
Presenter: Advocacy 101
Cancer Support Community Central NJ ( formerly Wellness Community)
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