Publications / Presentations

March 2022

The Rise of the Expert Patient in Cancer: From Backseat Passenger to Co-navigator
JCO Oncology Practice 

July 2021 

4th Edition
Don Dizon, Vance Broach, Dorinda Sparacio

April 8, 2021

COSMO (The Collaboration for Outcomes using Social Media in Oncology) Conference                    Patient Engagement in Social Media:When the Doctor is No Longer the Expert panel

July 2020

Antiemetics ASCO Guideline Update 

Journal of Clinical Oncology, published online July 13, 2020
 

January 27, 2020

Germline and Somatic Tumor Testing in Epithelial Ovarian Cancer Guideline 
Journal of Clinical Oncology, published online January 27, 2020
https://ascopubs.org/doi/full/10.1200/JCO.19.02960


January 10, 2020 
Benefits and Support of Twitter Cancer Communities
NRG Oncology Semi-Annual Meeting, 1/10/2020

    
 

September 12, 2019 
The Roads I Chose: Responding to Life with Ovarian Cancer

Gynecologic Cancer Awareness Event 
Rutgers Cancer Institute of New Jersey

June 28, 2019
Organizing Online Health Content: Developing Hashtag Collections 
for Healthier Internet-Based People and Communities 
JCO Clinical Informatics 
https://ascopubs.org/doi/full/10.1200/CCI.18.00124

June 1, 2019 
Fireside Chat: What Patients Want From Providers
ASCO Annual Meeting 
with Dr Elizabeth Dickson







May 2019 
We Can All Be Advocates
 http://globeathon.com/blog/we-can-all-be-advocates/

 

October 2018
Caregiving Is a Marathon, Not a Road Race: Reenvisioning Caregiver Support Services in Gynecologic Oncology
International Journal of Gynecological Cancer:

https://journals.lww.com/ijgc/Abstract/2018/11000/Caregiving_Is_a_Marathon,_Not_a_Road_Race_.12.aspx

September 2018
ASCO Advocacy Champion 2018

July 2018 
Mirrors and Windows
http://globeathon.com/blog/mirrors-and-windows/


April 2018 
"The Needs of Women Treated for Ovarian Cancer: Results From a #gyncsm Twitter Chat"
The Journal of Patient-Centered Research and Review
https://digitalrepository.aurorahealthcare.org/jpcrr/vol5/iss2/3/


December 7, 2017 
Cancer Knowledge Network
#gyncsm Community - Participants are Key 
https://cancerkn.com/gyncsm-community-participants-key/

October 2017
Antiemetics: American Society of Clinical Oncology Clinical Practice Guideline Update
Co-author, Journal of Clinical Oncology , October 2017

September 2017
ASCO Advocacy Champion 2017   

September 18, 2017 
Online Article
"Using Social Media for Health Care Support and Information"
AD-VO-CATE FOR MOM AND DAD

June 20, 2017  
Presentation: "Support in 140 Characters" 
Hunterdon Mercer Chronic Disease Coalition meeting

April 2017 
Senator Menendez visits the Rutgers Cancer Institute of NJ
Speaking Out Against NIH Funding Cuts - a Patient Perspective
with Senator Menendez  

March 2017 
Graceful Hope 5th Annual Event - Guest Speaker

January 2017
SHARE Blog
A Bit of Advocate in All of Us
https://www.sharecancersupport.org/2017/01/a-bit-of-advocate-in-all-of-us/


October 2016
Ovarian Cancer Survivor's Summit, Lisbon Portugal
Patient Presentation The Roads I Chose 

August 2016  

February 2016 
Cancer Hope Network Video
https://youtu.be/0rFxhHLPx9Q

 

December 16, 2015
Cancer Knowledge Network
 A Twitter Community is Born...and Grows
https://cancerkn.com/a-twitter-community-for-those-impacted-by-gynecologic-cancer-is-born-and-grows/
A brief history of the #gyncsm (Gynecologic Cancer Social Media) Community.
 
October 20, 2015 
Presenter: Patient Summit 2015 Philadelphia, PA
Building Community Using 140 Characters
Defined online patient communities, the development of healthcare hashtags and how online Twitter Cancer Communities support patients. Co-presenter: Alica Staley on the #bcsm Community.

October 17, 2015
Cancer Hope Network Chrysalis Gala
Featured Speaker
September 2015 
Co-Author with Dr Don Dizon of
100 Questions and Answers about Ovarian Cancer 

Jones and Bartlett Learning 

August 21, 2015
Cancer Hope Network Blog 
Blog post:
 7 years: Paying it Forward

July 20, 2015 
Patient Empowerment Network
Blog post:
 CancerLinQ for Oncology Data

September 2014
Stanford MedX e-patient scholar
IDEO Challenge participant
IDEO Panel member - Sunday Sept 7, 2014
http://youtu.be/-5PFxXsYZq0


Inside New Jersey Magazine interview
The Cancer Conundrum: Cases continue to increase, but Treatments and Prognosis are improving


Summer 2014 Issue
A Women's Health Magazine
Committed to Community


June 8, 2014
Rutgers Cancer Institute of New Jersey
Introducing the keynote speaker, Valisia LeKae
Survivors Day 2014 - 525,600 Reasons to Celebrate 



May 2014
PCORI Blog-  A Word from One of Our Patient Reviewers

https://www.pcori.org/blog/word-one-our-patient-reviewers

February 2014
SGO Issues -https://www.sgo.org/voices-winter-reflections/#more-12535

August 2013
Board Certified Pharmacist Video 



May 3, 2013
Health Activist Panel: Increasing Adherence Through Patient-Centric Programs
10th Annual Patient Summit 2013, Philadelphia, Pa
Wego Health Speakers Bureau

April 2013
ASCO Post Article
 It Takes A Village to Survive Ovarian Cancer by Dee Sparacio

March 6, 2013
Social Media for Pharma:A Match Made in Heaven or Hell
e-Pharma Summit,  New York, NY
Wego Health Speakers Bureau

September 2012
Speech Telling My Story 
Graceful Hope Dinner
Newark, NJ

March 2012
Presenter: Survivor to Survivor: Understanding Cancer Research
Cancer Support Community Central NJ

October 2011
Presenter: Reading Between the Lines
Cancer Support Community Central NJ

Fall 2011
Oncolyte - CINJ Newsletter
In Her Own Voice article

September 2010
Speech : My Story 
Teal Wings of Hope Walk
Hamilton, NJ

September 2010
Woman of Teal presentation 
Student Nurses , Seton Hall University 


October 2009
Healing with Compassion Video
Cancer Institute of New Jersey , Awards dinner

April 2009
Adding Teal in My Wardrobe presentation
Student Nurses
Seton Hall University

September 13, 2008
Good Day NY , Fox TV Interview with Dr Brown, MSK
January 2008
 

Presenter: Advocacy 101
Cancer Support Community Central NJ ( formerly Wellness Community)




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