Friday, May 22, 2026

Looking Forward to #ASCO26

This year's ASCO Annual Meeting runs from May 29 - June 2, 2026 in Chicago. The theme this year is "The Science and Practice of Translation:Improving Cancer Outcomes Worldwide". 

I will be attending virtually, so I know I will experience FOMO when I see the postings by other cancer advocates on social media. I will not miss the long walks to get to sessions in the various buildings at McCormick. But I will miss meeting up with other cancer advocates in the ASCO Advocate Lounge and interacting with gyn cancer researchers who through the years have become friends. 

There are a few new ASCO Voices that I look forward to following this year on X including @DrBarbiOnc, @NazliDizman ,  @Ramila, @YGaritaonaindia  and @DrSAHAddad. I recommend you follow them too, 

I recently planned my attendance to focus on ovarian cancer session. 

Friday May 29  

Gyn Cancer Oral Abstracts 3:45-4:45 (ET)  Livestream 

Sat May 30 

Gyn Cancer Rapid Oral abstract Session 9am (ET)

Opening Session  Livestream 

ctDNA in Clinical Practice 9am Livestream

Rare Gyn Cancers 5:45 

Antibody Drug Conjugates 5:45 Livestream 

Sun May 31 

Let's Debate: Upfront Surgery Versus Neoadjuvant Chemotherapy in Advanced Ovarian Cancer

State of the Art: Therapeutic Strategies on the Horizon for Gynecologic Malignancies

Monday June 1 

New Horizons for Hereditary Cancer Syndromes  

Gyn Cancer Poster session  ( posters available day of session) 

 

I'm ready to listen and learn. 

If you are attending in person please use the #gyncsm hashtag in your social media posts. I'll be posting highlights from the meeting following ASCO. 

 

Dee Sparacio

Every Day is a Blessing! 


 

 

 

Thursday, May 14, 2026

Prompted by a hashtag!

For World Ovarian Cancer Day on May 8th this year, OCRA ran a campaign called #ReachForTheScars. OCRA's goal with this program was to spotlight the stories, experience and the physical visible and invisible scars of women with ovarian cancer .

We who have been diagnosed have scars that are visible - although we may choose to hide those and some scars that are invisible. Your life being on the line can be a stressful and dare I say traumatic experience for those diagnosed with ovarian cancer. So with these scars there are stories. Here is mine once again. 

For World Ovarian Cancer Day, I chose this year to do a quick watercolor painting of my scars as part of the #ReachForTheScars campaign. These scars are hidden under clothes most of the time. You will not see these scars since you won't find me wearing a bikini or crop shirts. 


The first scar was the vertical one, made in 2005. It came after an hours long surgery - hysterectomy, oopherectomy and debulking surgery for stage 3B high grade serous ovarian cancer. This one healed over time as I continued treatment with nine cycles of carboplatin and taxol. In 2006 there was no evidence of disease. 

I recurred in 2008. The lesions that appeared on my liver and spleen were discreet,  so surgery was an option. I had choices : chemo ( carbo / taxol again) first then surgery, chemo first then surgery or a clinical trial which included bevacizumab.  I chose the surgery first which was done by a surgical oncologist along with my gyn onc. That surgery is what led to my second scar, a  horizontal one.  The surgeon removed my spleen on the left side of my abdomen and resectioned the lower lobe of my  liver which was on the right side of my abdomen. Their removal at the same time is why my OC scars now look like a T. 

Along with other cancer survivors, I carry invisible scars too. I continue to fear a recurrence. The fear is not as strong as in the early years of my survivorship but there are times when news of another long term survivor recurring after 15 years brings it back into the forefront.  I deal with some neuropathy in my toes. I have learned to deal with it by buying shoes with larger toe boxes. I admit they are not the most fashionable shoes but they work for me. And let's not forget how I still forget the names of things.  Thanks chemo brain!

I had thought that those two scars would be my last but just this week I have gained a new one. In April, I pointed out a new pink rough spot on the back of my arm to my dermatologist. After a biopsy came back that the spot was basal cell carcinoma, I decided to have incisional surgery this week to have it removed . This scar will be more visible due to its location and may lead to people asking questions about it. That is OK though. Then I can tell them how important it is to check your skin and see a dermatologist if you see anything new or a spot that changes in appearance. As we head into summer -my advice is to wear sunscreen , hats and spf 50 clothing when out in the sun for a period of time. 

 Do you have hidden scars caused by ovarian cancer? Share them in the comments. 

 Dee

Every Day is a Blessing! 

 

 

Tuesday, April 21, 2026

News From the SGO Annual Meeting 2026

I was excited to be attending the marriage of my nephew in North Carolina the weekend of April 11th. At the same time, the SGO Annual Meeting was taking place in Puerto Rico. I have followed news from the SGO meeting for many years and been an active patient advocate member since 2020. I even attended a few annual meetings in person.  I always enjoyed learning about the latest research and making connections with gyn oncs, researchers and other advocate members. 

This year's meeting theme was "Advancing Science. Empowering Teams. Embracing Change". Since I did not attend the annual meeting in person I will share information from a number of different sources regarding ovarian cancer research presented that weekend.

MedPage 

Chemo Combo Wins in Ovarian Cancer, but Single-Agent Therapy Still in the Game-NRG-GY019
 
"chemotherapy plus letrozole as standard of care for low-grade serous ovarian carcinoma (LGSOC), as letrozole monotherapy failed to meet non-inferiority requirements for progression-free survival (PFS). However, a subgroup analysis showed a 50% reduction in recurrence with single-agent letrozole in patients who had no gross residual disease after surgery. Analysis of that subgroup -- comprising almost two-thirds of the patients randomized to letrozole monotherapy -- yielded a hazard ratio (HR) within the non-inferiority range." 
 
Novel Regimen Boosts Survival for Recurrent Platinum-Resistant Ovarian Cancer
 https://www.medpagetoday.com/meetingcoverage/sgo/120748
 
"Adding the glucocorticoid receptor antagonist relacorilant (Lifyorli) to nab-paclitaxel improved median overall survival (OS) by 4 months versus nab-paclitaxel alone. The regimen received FDA approval in March on the basis of an improvement in progression-free survival (PFS)." 
 
  

 

Article from The Gynecologic Oncology Journal  @gynoncjnls

Identifying ovarian cancer with AI analysis of abdominal CT scans
Conclusion:
"Deep Learning using segmented abdominal-pelvic CT scans, particularly convolutional neural networks-based architecture, demonstrate strong potential for distinguishing Epithelial Ovarian Cancer (EOC)   from benign pelvic masses. Further studies are needed to create accurate Deep Learning models for early EOC detection. "

SGO Meeting News https://www.sgomeetingnews.org/ 

Mirvetuximab soravtansine plus carboplatin in folate receptor alpha-expressing recurrent platinum-sensitive ovarian cancer - late breaking abstract 

"The study included 125 patients with measurable, recurrent FRa-expressing PSOC and one prior line of platinum-based chemotherapy. ...MIRV plus carboplatin in recurrent  platinum-resistant ovarian cancer (PSOC) with an FRa greater than or equal to 25% can be safely administered with minor dose modifications and proactive adverse event management. It also achieved favorable objective response rates and progression-free survival rates, showed comparable efficacy to pre-poly (ADP-ribose) polymerase (PARP) inhibitor era benchmarks, and established the safety and efficacy of continuing MIRV after carboplatin for the first time.  The study suggests it can also be safe and effective to combine with carboplatin in the treatment of PROC, and to continue administering MIRV as a maintenance therapy after treatment with carboplatin."

A Clearer Signal in Ovarian Cancer 
https://www.sgomeetingnews.org/home/article/22964575/a-clearer-signal-in-ovarian-cancer 
 
"Emily O'Brien, MD, reported on the clinical performance of a ctDNA whole genome assay in patients with Stage III and IV ovarian cancer undergoing neoadjuvant chemotherapy (NACT), interval debulking surgery (IDS), and adjuvant chemotherapy (ACT).  ...The study followed 15 patients with advanced-stage, high-grade serous ovarian cancer treated between 2022 and 2024. ...Patients with persistent ctDNA positivity were more likely to have platinum-resistant or refractory disease, while one patient with platinum-sensitive recurrence demonstrated transient ctDNA clearance before becoming positive again at recurrence, suggesting ctDNA may capture evolving tumor biology in real time." 
ctDNA is still investigational and more testing needs to be done but there is promise that the clearance of ctDNA could lead to more personalized treatment. 

 If you attended the meeting please share in the comment section which studies you found most impactful to patient treatment. Thanks.

 Dee

Every Day is a Blessing! 

 

Thursday, March 5, 2026

Why Do You Write?

I just read a post Tiny Stories: Why I Write by my friend, Marie Ennis-O'Connor  She wrote her piece because of a prompt suggested by Linda Caroll  https://substack.com/home/post/p-189895052 to write a tiny story no greater than 250 words. 

Here is my response to that same prompt. 

I write because back in 2005 I was diagnosed with stage three ovarian cancer. And I felt alone. I had surgery , chemotherapy, and countless scans and tests. I spoke on the phone to one survivor of  ovarian cancer during my treatment. It was almost a year later until I met in person a survivor of ovarian cancer. 

At first when asked to share my story I said no.  

Then my gynecologic oncologist shared information about the LiveSTRONG Summit with me. I was lucky to be chosen to attend. I came home feeling energized and ready to share my story and advocate for a screening test for ovarian cancer. 

In December of 2007, I started writing this blog. I  shared how it felt to be a survivor of a cancer that I had only a 30% chance of surviving 5 years. I talked about research. When I had a recurrence I shared the good and the bad - the surgery, loosing my hair again,  the severe allergic reaction to carboplatin and the neuropathy.  I wrote to share information about ovarian cancer with women in my state and the world. Through this blog, I  met women  and their caregivers in the US, UK and Canada through this blog. 

By writing , I no longer felt alone. But even better than how I felt,  I knew I was reaching other women and supporting them. 

It is now nineteen years and I am still writing and making connections and feeling a part of a larger community and I am still advocating for research to develop a screening test for OC. 

Dee

Every day is a blessing! 

Friday, January 16, 2026

Beyond Being a Best Friend

It was August of 2010,  a little over a year since finishing treatment for my recurrence.  My husband and I started talking about getting a dog. Our son had taken his hound dog, Murphy back to graduate school with him. 

For us it was a bit risky. Taking on a puppy being just one year out of treatment for my recurrence made me a bit nervous. If I had to go back into treatment was that fair to the dog. I had recurred two years after finishing initial treatment for ovarian cancer and the science said if I might recurred it most likely would be sooner. I really didn't know what the future held but we decided to give dog ownership another try. 

Once we decided to adopt, we visited the ASPCA in the next county. I wanted a Cavalier King Charles size dog. My husband was open to any medium sized dog and we both knew we wanted a dog with a long nose. Our two prior dogs were a Boston  Terrier and a Pug. 

We found a smaller hound dog named Kelsey and asked to spend some time with her. We went into the play yard and played catch. She sat when I said sit.  She seemed to be a fun and well tempered dog. When we said we wanted to adopt her, we were told we could not because we did not have a fenced in yard. We live in a 55+ community and not allowed to fence our property. They said sorry. We said we were retired and could walk her multiple times a day. They said sorry we can't allow you to adopt her. We were disappointed to say the least. 

The next month on a Sunday we decided to go for a ride with no actual destination in mine. We would pick a different road to travel down to explore the area around our home. We didn't know that we would be finding our new best friend that day. 

We came home from that road trip with a new dog, complete with a longer nose and floppy ears. We were told she was a  a lab /beagle mix. We named her Amber because of the Amber areas on her white body.  Little did I know how important a role Amber was to play in my life after cancer.

When we brought her to the local vet for an exam he was positive she was a Jack Russell Terrier mix.  He recommended that she go for obedience training at a local kennel that trains dogs and owners. The Vet also told us don't be surprised if her ears end up pointing up . And that is exactly what happened.

After the obedience class, we were given the opportunity to try out some agility equipment. Amber loved the tunnel - she ran right in . Then she jumped on the table. ( Yes, this is allowed in agility.) Those moves changed her life and mine. 

We started to train to do agility. What fun we had. No one there knew I was a cancer survivor until years later. These classes allowed me to do something totally unrelated to my cancer diagnosis. It gave me time to not worry about a recurrence or think about cancer. Instead I was worrying about if Amber cleared the jump or made contact at the end of the A frame. We registered Amber with the AKC as a All-American Dog. Her full AKC title was Amber of Ashton. After she was measured (18"), we were able to compete.  

Oh what fun we had. We were no way as fast as those Border Collies but we were partners. I called her Ams and she kept me to my promise of cheese or hot dogs after running the course. We competed outside at horse parks and inside at sports arenas from Staten Island to Gloucester County, NJ. And we met lots of other amazing canines and their handlers. Friendships formed. We cheered on our friends who competed on the national level in agility at Westminster. 

 

She was my confidant. I could tell her when I was worried about a test result and why I was sad. When ladies with ovarian cancer would ask me what I did when I had scanxiety ,waiting for CT or CA-125 test results, I would say I take my dog on a long walk. And that is exactly what I would do. When Nick had surgery she made me feel safe at night and that everything would be OK. She was the best listener.  

Then she developed a calcium issue cause by an enlarged parathyroid. We stopped competing for a bit after her surgery this happened to coincided with Covid. We competed a few times in 2021 and then she was diagnosed with Cushings Disease and we retired. ( She did achieve the AKC Excellent title in Jumps with Weaves.) 

Amber loved to  travel. We would put on her harness and she knew she was going for a ride in the car. She was welcome at family and friends homes across the country from PA to Kansas to North and South Carolina, Georgia and Alabama.  She was a great traveling dog. 

 

We took lots of long walks around the town and then shorter ones around the neighborhood as she and I aged. 


She lost her mobility and her hearing, was having kidney and liver issues along with the Cushings. We had conversations with her vet about her health and quality of life. 

Yesterday, after 15+ years my husband and I said goodbye to our best friend. She was so much more than a pet. She was a special girl who helped me get through some rough times. I am heartbroken. 


But, I have wonderful memories of all our adventures in the rink and on the road.  She was good for my soul and my survivorship.  

I wrote about Amber a few times in my New Year Aspiration blog posts and when I discussed being grateful as well as this one about Parallels ( https://womenofteal.blogspot.com/2022/07/parallels-in-life.html ) 

 

Dee 
Every Day is a Blessing! 


Friday, January 9, 2026

Hello 2026!

We are one week into the New Year. I hope my readers have had a good start to 2026. 

Through the years I have always started my year off with a blog post of aspirations for the New Year. Those who know me know that I don't make resolutions. This way when things don't work out I don't have to be hard on myself. 

 But this year I'm going to try something a bit different. I am going to aspire to only one thing - to be "present". That's it. I have found myself rushing around, getting interrupted by a text or a call ( which usually isn't urgent)  or letting myself be sucked down the rabbit hole of social media - be it on Facebook or X or Pinterest or Instagram. Then I wonder why I feel stressed about having so much to do. 

So what does this being "present" look like for me?
I am going to focus on what I am doing at the time I am doing it. 

When I am playing pickleball, I will focus on my play not what I will be doing later that day. 

When I am walking Amber I will concentrate on my time with her. Checking on nature and listening to the sounds around me.  Not checking my phone. 


When I am reading I will try not to be distracted. Not always easy when Nick is watching TV in the same room. 

When I am speaking to friends and family,  I will keep my phone in my pocket on silence. 

When I set aside time to do my art, I will turn on some music and try to place all the other things I have to do out of my mind. And if I mess up a painting ( those watercolors mix so easily if I am not patient) so be it.  No harm in trying again. 

When I am focusing on growing in my faith - I will find a quiet spot and work on the bible study that I am doing or pray. 

When I am working on my advocacy work I will concentrate on the task at hand - reviewing grants or sharing new research results on X or Instagram. ( This one will be difficult. I start reading posts from the the organizations or people I follow on X and find myself to scrolling.  Bam ... 20 minutes go by and I've shared one post about ovarian cancer. 

When I am doing volunteer work with my local historical society, I will try to focus on my roles. 

So you might wonder how those aspirations for 2025 work out. I was pretty successful at most of them although in my cancer advocacy work I did accept a position on the State's Survivorship Workgroup and no surprise,  I still have not visited Maine. But there is always this year.  

 Wishing everyone a Happy and Healthy 2026! May your presence light up the world. 

 Dee
Every Day is a Blessing!  
 

 

Sunday, December 21, 2025

Friendships, Joy and an Anniversary

Past December posts have included photos and stories about the ornaments on my tree. This year there are three new additions and they each bring their own story.  

This year's Mount Vernon ornament is of George Washington kneeling in prayer. Over the course of 2025, I have said many prayers for friends and family members. Those Prayers were not always answered.  Over the past few days,  the losses I experienced break through the festivities and happy times and tinge it with sadness. 


The next ornament was from a friend of 30+ years. This time of year, the value of those long time friendships means so much. This friend came from a time before cancer and has remained by my side when I was diagnosed and is still part of my life's journey today.  It sounds cliche' but those friendships are a blessing. 


Since my cancer recurrence I moved to a small  55+ community. The move 15 years ago has brought new people into my life. These neighbors have become friends. We go out to dinner regularly,  we play pickleball and hang out at the pool and laugh and share our reviews of the new restaurants in town. They haven't walked my entire cancer cancer journey but they have added a sparkle and joy to my life. One of these new friends gave me the ornament you see below.

 

I hope that your friends, old and new, will bring you JOY this holiday season. 

On December 30th, I celebrate the 18th Anniversary of this blog. I am not as consistent now as I was during the first ten years of blogging to post but please stick around! In the new year, I'll be writing posts on newly approved FDA drugs for treating ovarian cancer, antibody drug conjugates currently in clinical trials and the importance of biomarkers and genetic testing in cancer patients. 

Wishing you all a Happy and Healthy New Year. See you in 2026!

 

Dee

Every Day is a Blessing!