Tuesday, March 31, 2015

SGO from a Distance- Part 2

Before I begin sharing some tweets from yesterday's SGO Annual Meeting I want to share Ovarian Cancer Prevention: Ready for Prime Time a commentary written by Otis Brawley, MD in the ACS Journal CANCER. Initially the letter was not available to those who were not subscribers to CANCER. But after tweeting about survivors / advocates having to pay $6 to read the letter, editors made the commentary as well as the original article ( Society of Gynecologic Oncology recommendations for the prevention of ovarian cancer) available to all free of charge. Thank you to Wiley and the editors of the ACS Journal CANCER for responding within hours to my request.

 Where You Are Treated is Important:

Pap Test & Ovarian Cancer:

Do Ovarian Cancer Survivors Know their BRCA Status?

Cediranib and Endometrial Cancer:

Ruciparib Effectiveness in Ovarian Cancer:

Cervical Cancer and Bevacizumab:
Solving the Health Care Problem

Thanks so much to all the docs and researchers at SGO for sharing their insights during the Annual Meeting.

Every Day is a Blessing!

Monday, March 30, 2015

SGO From a Distance

Due to family commitments I was unable to attend this year's SGO Annual Meeting in Chicago. I did though follow a number of advocates and physicians who were tweeting live from the event. Here are some of the high points of the sessions from Saturday and Sunday.

Ovarian Cancer:

Clinical Trials:


 Genetics/ BRCA Mutations:

Risk Reducing Surgery:



I certainly appreciate the efforts of those attending the meeting to let us at home be on top of the latest research in gynecologic cancers.

Every Day is a blessing!

Friday, March 27, 2015


Our family tree - a gift from my son and daughter-in-law

Last weekend was filled with joyful celebration. We traveled to Auburn, Alabama to attend my son's wedding. My husband and I were so happy to welcome a very beautiful, caring, smart and talented "daughter" into our family and we were touched by the family and friends (both ours and my daughter-in-law's) who made the trip to witness the beginning of Matt and Amanda's new life together.

In 2008, a few weeks after my surgery for a recurrence,  two very good friends gave me an  Operation Bling Foundation necklace. During the past few years I took it out often and looked at it and thought about the support my friends provided and smiled.  But it never seemed the right time to wear it. The right time was on Saturday when I was there for a milestone in  my son's life.

I know I've written this many times before on this blog but back in 2005 I did not think I would see my son graduate college, get his Master's degree or marry. But there I was sitting in the front row with my grandson on my lap watching him and his wife say their vows. Holding back tears. Feeling very blessed.

Every Day is a Blessing! Blessed to have Amanda as part of our family.

Monday, March 16, 2015

A Teal Walk for Ovarian Cancer Research - The Sandy Sprint

No need to wait until September to help raise awareness of ovarian cancer and funds for research. You can take part in the Sandy Sprint Super Hero 5K/10K this April. The Sprint is hosted by the Sandy Rollman Ovarian Cancer Foundation at the Philadephia Art Museum in Philadelphia.  This year is extra special as the Foundation will celebrate its 15th Anniversary.

While not required participants are encouraged to dress as their favorite Super Heros and to raise $150. If you are unable to attend you may participate as a Sleepwalker. Last year's almost 4000 participants raised $252,000 for research. Funds raised at this year's event will support the Ovarian Cancer Dream Team and the Ovarian Cancer Research Grant Program.  

I have completed this walk in the past and had lots of fun with other survivors and caregivers. These survivors would love for you to help out this year.

To register visit www.sandysprint15.kintera.org
Online registration closes on Wednesday April 22nd.

Every Day is a Blessing! Blessed for Foundations like Sandy Rollman who are raising funds for research and a cure.

Sunday, March 15, 2015

Your Immune System and Cancer Treatment - Cancer Support Community Free Progam

Research into developing  immunotherapy treatments for various cancer has increased dramatically over the past few years. Here is a link to an article on the immunotherapy treatments for advanced melanoma and cervical cancer that were highlighted at the 2014 ASCO Annual meeting. 

In an effort to inform patients about immunotherapy treatments a free workshop on your immune system and immunotherapy as a cancer treatment will be presented in NJ.

Thursday , April 16, 2015
6:00-8:00 PM 
Bridgewater Manor
1251 US 202/206 
Bridgewater NJ
Dinner will be served.

Registration is required . Please contact Cancer Support Community Central Jersey at (908)-658-5400 to register (www.cancersupportcnj.org) .

Please click on the image above for speaker information and sponsors of the event.

Every Day is a Blessing! 

Subway Series, Teal and NOCC

Help raise funds to assist NOCC in it's mission to raise awareness and support women with ovarian cancer by taking part in this exciting sporting event.

A portion (15%) of the regular price tickets sold for the 4:05 pm April 25th Yankees vs  Mets baseball game at Yankee Stadium will go to NOCC.
Please click on the image below for more information or see
--> http://nocc.kintera.org/YankeesMets.

Every Day is a Blessing!

Sunday, March 8, 2015

Real Rock Stars

I watched NED (No Evidence of Disease) - the Movie a few nights ago. A local PBS station was broadcasting it so I set my DVR.  The documentary is about six gynecologic oncologists, talented musicians, who form a band. As NED plays concerts we get to meet some of the band member's patients and biggest fans.

I have wanted to watch the Movie since it was released but I was uncertain of how I would react to it. It turns out I experienced all the reactions I thought I would.  First, let me say I loved the music.  It was so nice to see the personal sides of the doctors.  I smiled as I watched them hug their patients because that is the type of relationship I have with my gyn onc. I nodded my head as the patients told their stories and I cried as I watched and listened to a husband whose wife had passed away.

I know there are many worthwhile quotes from the movie but these are three of my favorites.

"...Breast cancer might have pink ribbons but we have a Rock Band." And what a talented Band they are!

"Awareness is the first step." Not all gyn cancers have screening tests so being aware of changes in a women's body is important to diagnosis.

"...spirit is what makes you a woman." It is difficult to feel feminine when you have had your ovaries , fallopian tubes, uterus etc  removed  and  have no hair during treatment but this patient was so right when she talked about a woman's spirit.

Be sure to check out the movie's website ( http://www.nedthemovie.com/ ) for the broadcast schedule and the band's website (http://www.nedtheband.com )  to learn more about the band members and their music. I highly recommend NED the Movie. 

Thank You
John Boggess, M.D.
Joanie Hope, M.D.
Nimesh Nagarsheth, M.D.
William "Rusty" Robinson, M.D.
John Soper, M.D.
William Winter, M.D.
for sharing your talents - medical and musical with us. 
Thank You 
patients and families for sharing your narrative.


Every Day is a Blessing!