Showing posts with label Equity. Show all posts
Showing posts with label Equity. Show all posts

Tuesday, June 11, 2024

An Oncology Equity Summit and #ASCO24 Connections

On Monday June 3, 2024,  I had the opportunity to attend the Pfizer Oncology Health Care Equity Summit: Models for Collaboration and Community Action by Conquer Cancer's EveryGrant®. 

After being welcomed by Dr Katherine Reeder-Hayes, we heard from Dr Aida Habtezion, Chief Medical Officer of Pfizer. After reviewing the representation by race and ethnicity in clinical trials in the US, Dr Habtezion highlighted Pfizers committment to health equity in oncology. 


 

Next, a panel of presenters including advocate Sharon Rivera-Sanchez, shared their research and experience reaching underrepresented patients. 

Brian Rivers, PhD, MPH (Morehouse School of Medicine) spoke on the Deep South Community Health Advocates Network . The Network recruits and trains lay advocates/navigators as community health workers to disseminate cancer information on risk reduction, screening, survivorship and clinical trial participation. He also spoke on a project to improve access to primary care and promote education and preventive screenings for prostate cancer among rural African American men.

Shoshana Rosenberg, ScD, MPH (Weill Cornell Medical College) spoke on the unmet psychosocial needs among adults with metastatic breast cancer in New York City. She described the intervention RAISE,which uses an employment screening tool to assist  with the employment challenges experienced by metastatic  breast cancer patients treated at NYP-Weill Cornell Medicine (Manhattan) and Brooklyn Methodist Hospital. 

Kamran Ansari, MS Pfizer Oncology division spoke on Pfizer's approach to clinical trial diversity

Sharon Rivera-Sanchez, patient advocate and founder of Trials of Color spoke on the barriers to participation in clinical trials such as logistic and financial barriers, lack of awareness of trials, eligibility criteria, mistrust and the complexity of clinical trial platforms. Solutions include education, building relationships, simplifying enrollment, inclusive eligibility, and child care support. Her final remark needs highlighting!

Kenneth W. Merrell, MD, Medical Director Global Bridges, shared  the mission of Global Bridges to mobilize a global network of healthcare professionals and organizations dedicated to advancing effective diagnosis and treatment through medical education. The progam has training 50,000 Health Care Providers in 85 countries. They have provided 17 grants in oncology in the 2024-2026 cycle in Africa. 

Yanin Chavarri Guerra, MD, MSc Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubriran , Mexico spoke on the social determinants of health and disparities in cancer care for patients with metastatic breast cancer in Mexico. Patients were recruited from 3 hospitals. The barriers related to social determinants of health in patients with metastatic breast cancer may be addressed by system-level interventions.

Salvatore Alesci, MD, PhD, National Minority Quality Forum (NMQF) shared the NMQF vision to achieve a just and fair American health system that insures equitable access to optimal care. 

Andrew E. Chapman, DO, FACP, FCPP Director of the Sidney Kimmel Cancer Center at Jefferson concluded the panel discussion . He discussed how the ACES model ( Access and Care Engagement Support) can transform cancer care at the cancer center's main and regional sites.

One of the best parts of attending ASCO are the connections and reconnections I make with other advocates and researchers. This year I was able to catch a few of those connections in photos. Great times with  Barbara, Helen, Stacey, Stephanie, Ting Ting, and Annie.  


But there were also the important connections with clinicians and researchers I have worked with through the years on developing trials, the #gyncsm community, ASCO or the NCI and Cancer Hope Network. It was wonderful meeting Drs Markham and Samantha Schrager (Cancer Hope Network),  Cervical Cancer Advocate Linda Ryan and Dr Kohn, as well as Dr Dellinger, Lou, and Dizon.



I also got to reconnect with Dr Ophira Ginsburg at the President's Reception. We first met at the ASCO Annual Meeting in 2015. 

 

This post completes my reporting from #ASCO24. There will be a bit of a break posting on this blog and  from advocacy over the summer but September - Gyn Cancer Awareness month is right around the corner. 

Dee
Every Day is a Blessing! I was blessed to have not only attended but presented at ASCO this year. 

Tuesday, April 4, 2023

SGO Annual Mtg 2023 : Disparities/ Equity Research

In this post I will focus on sharing Tweets and information from the Diversity, Equity presentations I attended at the 2023 SGO Annual Meeting. There were a number of important studies presented to better understand equity issues for those diagnosed with a gynecologic cancer. 

Two studies focused on Asian / Pacific Islanders 

Do we need to separate out non-hispanic Pacific Islanders from Asians? 

Food deserts associated with worse survival outcomes.

 Cervical Cancer 

 

 

 

Clinical Trials - Comorbidity exclusions

Geographic disparities in access to gynecologic oncologists

 Health Literacy 

Low income and racial/ ethnic minorities had lower rates of health literacy which impacts health outcomes  


Additional information may be found at  https://www.healio.com/news/hematology-oncology/20230329/1-in-4-patients-at-gynecologic-oncology-clinic-lack-adequate-cancer-health-literacy

 

Caring for transgender patients

 Please visit Welcoming Spaces at https://www.sgo.org/welcomingspaces/ for more information. 



Tomorrow's post will highlight some other sessions of interest from palliative care, to compression therapy to  biomarkers to funding.  See you tomorrow!


Dee
Every Day is a Blessing! 

Friday, March 25, 2022

SGO 2022 Annual Meeting - Disparities and Equity Research Across Gyn Cancers

The #BreakingBarriers and #BuildingBridges theme of this year's meeting was evident in the presentations on equity and disparities.

Breaking Barriers : Toward Greater Equity in Gyn Oncology Care : Scientific Plenary I

 

Black and Hispanic Patient Representation in NCCN-Recommended Systemic Therapy Regimens for Endometrial Cancer – A. Kulkarni

 

 

Effect of Racism on Cancer Care in Women with Gynecologic Cancers – Speaker: D. Lewis

 

Neighborhood Economic Vulnerability is a Predictor for Patterns of Care and Outcomes for People with Uterine CancerNeighborhood economic vulnerability is a predictor for patterns of care and outcomes for people with uterine cancer

 

Overspending Driven by Dose-Specific Packaging of Lenvatinib for Endometrial Cancer – E. Aviki Financial toxicity of drug packaging for endometrial cancer. 

Distillation Dr Doll “Health equity research requires scientific rigor”

 

 

Do U.S. Screening Guidelines Contribute to Higher Stage and Worse Survival in our Youngest and Oldest Cervical Cancer Patients? C. Sitler

 

 

Impact of Medicaid Expansion on Postoperative Mortality in Women with Gynecologic Cancer: A Difference-in-Difference Analysis – Speaker: S. Huepenbecker

 

 

Health Equity is the Bullseye of the Quadruple Aim: A Social and Moral Imperative – ABOG Speaker: J. Nwando Olayiwola, MD, MPH, FAAFP


 

Focused Plenary Session III: Inequities during the Pandemic and Beyond 

 
Refusal of Gynecologic Cancer Surgery is a Surgical and Oncologic Disparity, Not an Issue of Noncompliance – Speaker: D. Samuel

 

 Socio-Ecological Model of Barriers to Cascade Testing for Hereditary Cancer Syndromes: Systematic Review of the Literature – Speaker: X. Li

 

 Geospatial Approaches for Surveillance of Disparities in Clinical Trial Enrollment – Speaker: J. Gordon

 

 

When Being Insured is Not Enough: The Effect of Insurance Type on Survival in Cervical Cancer – Speaker: C. Kucera

 

 

Race Matters: Disparities in the Use of Maintenance Therapy in Ovarian Cancer (OC) – Speaker: E. Schrader

Thank you Drs Westin, Chino, Ma, Stevens, and Sitler for tweeting their the insights.

 

 Dee

Every Day is a Blessing!

 

Thursday, June 10, 2021

#ASCO21 Cancer Disparity Sessions

The theme for this year's ASCO annual meeting was EQUITY: EVERY PATIENT EVERY DAY EVERYWHERE.  I attended a number of sessions including  Equality in Care for All Women: Addressing Disparities in Gynecologic Malignancies and Social Determinants, Not Biology: Time to Reappraise Genetics- Based Theories of Racial/Ethnic Cancer Outcome Disparities and More Than the Patient: Structural Racism and Cancer Disparities.

Here are the tweets I posted during the sessions.

https://twitter.com/womenofteal/status/1400889490294648837?s=20 

Equality in Care for All Women: Addressing Disparities in Gynecologic Malignancies

Opening Session

 

Social Determinants, Not Biology: Time to Reappraise Genetics-Based Theories of Racial/Ethnic Cancer Outcome Disparities 

 

More Than the Patient: Structural Racism and Cancer Disparities

 

There are so many areas where we all can improve the care for "every patient everywhere" and these open  and honest discussions can make these needed changes happen.  

 

Dee

Every Day is a Blessing! 

Tuesday, March 23, 2021

2021 SGO Virtual Annual Meeting Saturday March 20

Here are highlights from the Virtual #SGOmtg sessions I attended on Saturday March 20, 2021. 

The morning began with a wonderful get-together for Patient Advocates at a 9am session. I am so glad to see patient advocates play a role in so many aspects of the SGO organization.

 In real time, I shared information on Twitter( @womenofteal) about the sessions I attended using the #gyncsm and #SGOmtg hashtags

 Surgery:

MEDSCAPE shared this article on MIS and interval debulking surgery. https://www.medpagetoday.com/meetingcoverage/sgo/91738

Equity 

PAOLA-1 Olaparib plus Bev

Tumor infiltrating lymphocytes

Keynote 158 Cervical Cancer

 

 ENGOT-OV 16/ NOVA  niraparib

PARP Inhibitor duration of follow-up

Cervical Cancer Radiation study

Shared Decision Making Tool

Niraparib as Maintenance Therapy- Dr Matalunis https://ascopost.com/videos/sgo-2021-virtual-annual-meeting-on-womens-cancer/ursula-matulonis-on-ovarian-cancer-niraparib-as-maintenance-therapy/

Stop by tomorrow for my Sunday highlights.  

Dee

Every Day is a Blessing!

Monday, March 22, 2021

2021 SGO Virtual Annual Meeting - Friday March 19th Highlights

I was happy to be able to attend the virtual SGO Annual Meeting. The meeting started on Friday, March 19 with sessions during the day and evenings over the weekend. The meeting continues with evening sessions through Thursday March 25th.  Interacting with presenters and others in the chat feature of the meeting platform was exceptionally good and helpful.

 In real time, I shared information on Twitter( @womenofteal) about the sessions I attended using the #gyncsm and #SGOmtg hashtags. Below are some tweets of Fridays sessions I found most interesting.

Friday

Nutritional Supplements 

Patient physician conversations

 PARP  inhibitors 

 

ARIEL 4  Rucaparib vs chemo

KEYNOTE 146  Pembrolizumab - Lenvatinib

Additional information may be found in the ASCO Post Article https://ascopost.com/news/march-2021/pembrolizumablenvatinib-may-improve-survival-in-advanced-endometrial-cancer/?utm_source=TAP%2DEN%2D032021&utm_medium=email&utm_term=51c356fa5771cf054b74a66e437b4089

Secondary Cytoreductive Surgery

Endometrial Cancer

Equity in Gyn Cancers

ACA and insurance


Here was a fun activity on the meeting platform - puzzle time! How I wish we were actually in Seattle

 

 

 

Dee

Every Day is a Blessing!