Tuesday, May 28, 2019

2019 Annual Retreat On Cancer Research in New Jersey


This year's retreat was as informative and interesting as in years past.

The morning began with the Public Forum on ScreenNJ - Cancer Prevention , Education and Detection. Dr A Stroup started off the session talking about cancer burden in NJ. 
NJ Cancer Burden

Cancer Disparaties

Dr M Steinberg talked about Lung Cancer screening and treatment. Lung cancer is the leading cause of cancer death in women. He also made note of the fact that smoking affects nearly every organ of the smokers body. If a smoker stops smoking,  over time the risk of heart attack and stroke will drop. If you have 30 pack years of smoking ( smoke one pack a day for 30 years) then  Low Dose CT screening is available to you as a screening tool.


Screening option

Dr Natalie Pereira discussed Colorectal Screening and noted that it takes about 10 years for a abnormal polyp to become malignant cancer. The risks for colorectal cancer are age, family history, polyps, Lynch Syndrome and eating high quantities of fat or red meat.

Symptoms of colorectal cancer

Screening Recommendations

Dr Kinney shared information on the ScreenNJ Statewide program. Less than 60% of the eligible population in NJ has been screened for colorectal cancer and 10% of the eligible population in NJ has had lung cancer screening. We need to educate residents of NJ that these screening tests are available to them.


The Keynote speech was by Dr Steve Rosenberg, Chief of Surgery at the NCI. He presented an overview of the development of cell transfer therapy. There are a number of Immunotherapies using immune cells to recognize and kill cancer cells . He then focused on using those therapies to treat epithelial cancers. Epithelial cells are found in the linings of most organs - ovaries are one of those organs. Cell transfer therapy has had durable regressions in melanoma and in recent research in other epithelial cancers.


After lunch I listened to a short talk on Nanotechnology Approach for Precision Targeted Therapy for Ovarian Cancer by J Sapiezynski, a student at the Earnest Mario School of Pharmacy, Rutgers. He used liposomes as a dose delivery system for cisplatin and SiRNA.

During the poster session I was able to chat with researchers who presented the results of the  Gynecologic Cancer Patients' and Supporters' Reports of Sharing (and Holding Back)Cancer-Related information during Onoclogy Visits Study. Eighteen patients ( during cycles 2 and 5 of their treatment)  and sixteen caregivers took part in the study. The theme that "Everything is easy to share" showed that patients found it easiest to discuss side effects with their oncology team. Yet there was also a theme of "Nothing held back...except" when patients or caregivers felt uncomfortable sharing some information - such as embarrassing information or prognosis.

I am so pleased to see that important research is taking place right here in my home state.

Dee
Every Day is a Blessing! 

Saturday, May 4, 2019

Comment Period -Germline and Somatic Tumor Testing in Epithelial Ovarian Cancer guideline

ASCO develops practice guidelines for cancer treatment and care. Currently draft recommendations for the Guideline for Germline and Somatic Tumor Testing in Epithelial Ovarian Cancer  is open for comment. The public is invited to comment on the draft.

Here is information from ASCO  if you would like to read and comment on the draft rerecommendations -

ASCO invites interested stakeholders to submit comments on draft recommendations from the Germline and Somatic Tumor Testing in Epithelial Ovarian Cancer: ASCO Clinical Practice Guideline. 
To participate, interested reviewers can download the confidentiality agreement and email a signed copy to guidelines@asco.org to receive access to the survey containing the guideline recommendations. Comments will be accepted through Thursday, May 16. Learn more at www.asco.org/open-comment-guidelines.
 
Advocates, patients and caregivers may comment too.

Dee
Every Day is a Blessing!

Wednesday, April 24, 2019

Upcoming Public Forum on ScreenNJ - May 2019

For the past few years I have attended a number of public forums as part of the Annual Retreat on Cancer Research in NJ. You may read about the one I attended in 2018 on HPV cancers here  and  the one I attended in 2017 about precision medicine here

If you are an cancer advocate or just a resident interested in learning more about screening I invite you to register for this year's Public Forum about ScreenNJ - Cancer Prevention Education and Detection. Presentations this year include Cancer Burden in NJ, Colorectal Prevention and Detection, Lung Cancer Screening , and information on the ScreenNJ State Program. This year's forum is on May 23, 2019 from 8:30 am - 10:00 am at the Rutgers Student Center in New Brunswick, NJ.



Registration is free and may be found at:
www.mpi-evv.com/2017NJCR/2017PFReg.asp

I hope to see you there!

Dee
Every Day is a Blessing! 

Friday, March 29, 2019

Aren't We All "Women Rowing North" - a Book Review

A few weeks ago, I ran across a book online whose title peaked my interest. I added it to my Goodreads list and put a hold on the book at my local library. Last week I picked it up from the library and read it in 5 days. Women Rowing North - Navigating Life's Currents and Flourishing As We Age by Mary Pipher focuses on women who are older but as I read it I found parts that also can apply to women who are facing any challenge - a cancer diagnosis, the loss of a child, divorce etc.

After reading a few chapters I started keeping track of advice and quotes that touched something in my heart and mind. Here are my favorites:

"with age we experience less anger and anxiety. I suspect that can not be because we have less tragedy but rather because we have better coping skills."

"We can feel helpless at times…However we can move toward acceptance and resilience.Our tragedies can teach us to trust and connect us to others."

"Friendship is really not a noun but a verb. Relationships of any kind require attention, energy and time"

"Activism is complicated. …All Activists need to set limits or we can become exhausted and burned out."

 "Women can find ways to be connected and useful"

"grandmothering is complicated. Grandmothering requires great diplomatic skills and self-discipline."

"The culture shapes us and we shape it. As our bodies grow old we must find new ways to stay engaged and empowered. … Let’s push out into the current and row."


In the past almost 14 years as an ovarian cancer survivor I have found that cancer changed me. I have grown , learned and engaged with others. This book has something to offer women in every walk of life and I highly recommend it. 

Dee
Every Day is a Blessing!
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Wednesday, March 20, 2019

SGO meeting Tuesday

Here are the top tweets from the SGO meeting on Tuesday!  

Treating the Whole Patient
Patient Perspective on Clinical Trials


 Maintenance Olaparib


GAS6 and chemoresistance

Immunotherapy



Cisplatin/Gemzar/Pembrolizumab

Next year's meeting is in Toronto. And the gavel has passed to Dr Huh!

Thank you to  @KMKoerten , @Stigetta, @DeannaTeoh , @drcarolbrownMSK , @SGO_org, @DDNewsOnline, @BPothuri for tweeting from the meeting!


Dee
Every Day is a Blessing!

Tuesday, March 19, 2019

SGO Annual Meeting - Sunday/ Monday

Delayed but here are some important tweets from the SGO meeting on Sunday and Monday.


Risk Reducing Salpingectomy and QOL


 Phase 1 Levantinib and weekly taxol in recurrent OC
PARP and ARID1A

JAVELIN  - Avelumab+peg liposomal doxorubicin VS peg liposomal doxorubicin

Phase 2 Pembro and Bev

Minorities and clinical trials

OC Patient Preferences - maintenance therapy

CCNE1 and BRD4 Expression and platinum resistance

 Thank you @KMKoerten , @DKhabeleMD, @ShannonWestin, @Stigetta, @SW_MedReporter, @StephASullivan, @StephanieVBlank for posting from the meeting!


Dee
Every Day is a Blessing! 

Sunday, March 17, 2019

SGO Annual Meeting - Saturday 3/16

Saturday SGO Meeting:

I wish I had been able to hear the SGO Presidential speech by Dr. Agnes Binagwaho (@agnesbinagwaho) .



Financial Toxicity



Genetic Testing
PARP Inhibitors


Cancer Disparity

Leadership - Dr Parkham Zambia


Thank you Yvette WilliamsBrown (@MYvetteWB), Ali Saiz, MD (@AllisonSaizMD), Shannon Westin (@ShannonWestin), Ross Harrison (@RossFH), Erin Stevens (@erinstevensmd), BJ Rimel (@BJRimelMD) and Annie Ellis (@Stigetta) for taking the time to tweet from the meeting.

Dee
Every Day is a Blessing!