If you are a cancer survivor or carepartner why not check out this course.
Dee
Every Day is a Blessing!
Showing posts with label caregivers. Show all posts
Showing posts with label caregivers. Show all posts
Wednesday, February 7, 2018
Tuesday, July 22, 2014
Elixir Fund Registry- A Patient / Caregivers Wish List
Just about four years ago at a Mercer County Cancer Coalition (now called the Hunterdon/Mercer Chronic Disease Coalitio) meeting I meeting Meg McQuarrie from the Elixir Fund.
The Elixir Fund "provides comfort and support to cancer patients and their caregivers. "Their goal is to reduce the stress of treatment and provide support to patients and their caregivers so they can take a break from cancer. They get their inspiration from the cancer journey of Meg's brother, Kevin.
Yesterday, Meg and I met to discuss the latest project of the Fund- the Elixir Fund Registry. This project, similar to a bridal registry, is a way for family and friends to provide support ( emotional and physical) to their loved ones who are in treatment as well as their caregivers. Patients and caregivers can make a wish list for things they would love to have or things they would like to do to make their treatment time easier. The items on the list are varied from a massage, to meals delivered to a patients home, help with putting on makeup, transportation to appointments, yoga classes or it can be a custom wish. Many local businesses have agreed to help with providing the services. The registry will be online and initially will involve cancer patients/ caregivers who reside in NJ.
The Elixir Fund Registry is ready to be tested and the Fund is looking for people who have experience as a cancer patient, caregiver or health care provider ( such as a nurse or social worker) to test out the site and provide feedback to the Fund so they can insure that the program meets the needs of cancer patients and caregivers. I am so happy to see a patients centered approach to designing the program. Program testing is supported by Eli Lilly.
Meg allowed me to do a test run of the Registry and it is easy to set up and use.
Please contact Meg by calling 800-494-9228 or e-mailing her at meg@elixirfund.org
Dee
Every Day is a Blessing!
The Elixir Fund "provides comfort and support to cancer patients and their caregivers. "Their goal is to reduce the stress of treatment and provide support to patients and their caregivers so they can take a break from cancer. They get their inspiration from the cancer journey of Meg's brother, Kevin.
Yesterday, Meg and I met to discuss the latest project of the Fund- the Elixir Fund Registry. This project, similar to a bridal registry, is a way for family and friends to provide support ( emotional and physical) to their loved ones who are in treatment as well as their caregivers. Patients and caregivers can make a wish list for things they would love to have or things they would like to do to make their treatment time easier. The items on the list are varied from a massage, to meals delivered to a patients home, help with putting on makeup, transportation to appointments, yoga classes or it can be a custom wish. Many local businesses have agreed to help with providing the services. The registry will be online and initially will involve cancer patients/ caregivers who reside in NJ.
The Elixir Fund Registry is ready to be tested and the Fund is looking for people who have experience as a cancer patient, caregiver or health care provider ( such as a nurse or social worker) to test out the site and provide feedback to the Fund so they can insure that the program meets the needs of cancer patients and caregivers. I am so happy to see a patients centered approach to designing the program. Program testing is supported by Eli Lilly.
Meg allowed me to do a test run of the Registry and it is easy to set up and use.
Please contact Meg by calling 800-494-9228 or e-mailing her at meg@elixirfund.org
Dee
Every Day is a Blessing!
Monday, July 9, 2012
A Book for Caregivers
Over the past few months I have been following the tweets of Rob Harris, a cancer caregiver
(@Rob_Cares) . He has written some great advice in those tweets for caregivers of those with a serious illness. He also writes for his website http://robcares.com/ .
Rob has taken his experience as a caregiver and the advice he provides to others and gathered them together into a wonderful book called "We're In This Together: A Caregiver's Story". The story is about his wife's battle with two cancers and his role as a caregiver. But the book includes 70 tips which are helpful not only to caregivers but family and friends of those facing a chronic illness, too.
You can purchase the book on Amazon. A dollar from every book sold will go to the Leukemia and Lymphoma Society to help cure blood cancers.
Please share the word about this helpful book with those you think might benefit from the advice- I just did.
Dee
Every Day is a Blessing!
(@Rob_Cares) . He has written some great advice in those tweets for caregivers of those with a serious illness. He also writes for his website http://robcares.com/ .
Rob has taken his experience as a caregiver and the advice he provides to others and gathered them together into a wonderful book called "We're In This Together: A Caregiver's Story". The story is about his wife's battle with two cancers and his role as a caregiver. But the book includes 70 tips which are helpful not only to caregivers but family and friends of those facing a chronic illness, too.
You can purchase the book on Amazon. A dollar from every book sold will go to the Leukemia and Lymphoma Society to help cure blood cancers.
Please share the word about this helpful book with those you think might benefit from the advice- I just did.
Dee
Every Day is a Blessing!
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