What I learned at the Summit can be separated into three areas-science, communities and life with cancer.
The Science:
Photo provided by AstraZeneca |
After the presentation we took a tour of the Phase 1 laboratories at MedImmune where the Summit was held.
Oncology Bloggers at the Summit had the opportunity to see the MedImmune Phase1 labs. |
Our Communities:
Photo provided by AstraZeneca |
Life with Cancer:
Photo provided by AstraZeneca |
Did you know that patients should be asked their distress level at each doctor visit? Studies have shown that 50% of all cancer patients experience a high level of distress ( emotional , mental, social, spiritual) during treatment. Lung, pancreatic and brain cancer patients report the highest levels. One in four cancer patients will experience depression. It has also been found that patients with lower quality of life experience more depression. When a person has situational depression it has been found that as the stressors patients experience subside so does the depression . When clinical depression occurs medication and therapy( cognitive or behavioral) may be prescribed.
Then Dr. Bolte talked about anxiety and fear. I could definitely relate. To this day when I have to have a CA-125 test or CT scan my anxiety level shoots through the roof. And it was good to see some of the things I use to calm down were listed in Dr Bolte's list of things to do to deal with anxiety.
- Stillness- prayer, mediation, allow to grieve, acknowledge ( I have a favorite mantra.)
- Motion- exercise, journaling, etc ( I love to paint when I am anxious.)
- Ignore- this is ok for short periods of time ( When I learned my friend had passed last month I did choose to ignore it for a few hours. )
- Cancer itself
- Psychological Distress
- Cancer Therapy
- Side Effects
- Alterations in relationships
As I was listening to Dr Bolte I noticed that the key word she kept using was communication. Cancer patients / survivors should communicate with their partner, spouse, family, friends and physician so everyone is aware of what you need and don't need. I can agree with that 100%.
One of the best parts of the Summit was being able to spend time with the other bloggers. Since I follow most of the bloggers online it was wonderful meeting them in person. Below is a list of my fellow blogger's names as well as links to their blogs and twitter handles.
Katie Brown - Lung cancer
Website/blog: www.lungevity.org & www.iamkatiebrown.com
Twitter @LUNGevity & @brownbeansprout
Dian “CJ” Corneliussen-James - metastatic breast cancer
Blog http://www.metavivor.org/blog/
Twitter @METAvivor
Katherine O'Brien - metastatic breast cancer
Website https://ihatebreastcancer.wordpress.com/
Twitter @ihatebreastcanc
Jennifer Campisano- metastatic breast cancer
Blog http://www.boobyandthebeast.com/
Twitter @Jcampisano
Alana Ray Osborne - general cancer
Blog: http://www.powerfulpatients.org/blog/
Twitter @alanaray40
Thank you AstraZeneca and MedImmune for such an informative day!
Dee
Every Day is a Blessing!
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