tag:blogger.com,1999:blog-22232853466119222602024-03-18T11:33:10.231-04:00Women of TealTeal is the awareness color of ovarian cancer. Women of Teal is a play on the words "Man of Steel" used to describe Superman. I have found my fellow ovarian cancer survivors to be the strongest, most helpful women in the world. They are truly Women of Teal!
Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.comBlogger1217125tag:blogger.com,1999:blog-2223285346611922260.post-24490328348778218282024-03-18T10:35:00.001-04:002024-03-18T10:35:16.866-04:002024 SGO Annual Meeting Saturday March 16th Session Review I virtually attended five sessions on day one of the SGO Annual Meeting - the Opening Ceremony, News We Can All use (Plenary), Moving the Needle (Plenary), Science to Drive Purpose(Plenary) and Together We Tackle Cancer Rapid Fire Poster Sessions. (Saturday March 16,2024.)Please be patient while reading this post since it may take some time for all the X posts and photos to Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-7733005174490543852024-03-12T14:13:00.006-04:002024-03-12T14:13:57.688-04:00Preparing For This Year's SGO Annual Meeting I will be attending this year's SGO Annual Meeting virtually. It is being held in San Diego, March 15-March 18, 2024. On Friday, March 15th the 2024 Patient and Advocate Education Forum will also be held, in San Diego. The Forum is sponsored by the Foundation for Women's Cancer. I attended last year's forum and it was informative and allowed time to network with other patients , advocates and Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-80718860900540663842024-02-26T14:03:00.000-05:002024-02-26T14:03:10.973-05:00Rare Disease Day 2024 February 29th is Rare Disease Day®. Rare Disease Day is an
annual awareness day dedicated to raising the understanding of rare
diseases and calling attention to the special challenges faced by patients and
the community. Worldwide 300 million people are living with rare diseases. To learn more about rare diseases and to read stories of those living with rare diseases visit the Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-44408172027213090862024-01-25T16:10:00.000-05:002024-01-25T16:10:22.220-05:00Memories and ChangeOne thing I can say on this journey with cancer is that Change is Inevitable. In 2006, after I finished treatment for ovarian cancer, I started attending a gyn cancer support group at The Wellness Community of Central New Jersey which later became the Cancer Support Community of Central NJ and is now Crossroads 4 Hope. I was so happy to be with other women who had Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-41022657606556446142024-01-03T14:48:00.004-05:002024-01-03T14:48:29.668-05:00So Long 2023 - Welcome 2024 !For those of you have followed this blog know that I don't make resolutions for the new year but rather I make a list of aspirations. When I was thinking about what aspirations should be on my list this year, I realized I still have not visited Maine. How long has visiting Maine been on my list? I went back and checked my posts and Visiting Maine shows up for the very Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com2tag:blogger.com,1999:blog-2223285346611922260.post-2826996715926508922023-12-31T12:14:00.000-05:002023-12-31T12:14:06.665-05:00Ending Another Year of Blogging On December 30, 2007 , I started writing this blog. It began as a place to share my story, support women diagnosed with ovarian cancer in New Jersey and to raise awareness of the disease. It has developed over time to be a place where I not only share my personal news but also share all aspects of cancer research from bench studies to clinical trial results. I have also reported news aboutDeehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-16623808576487579022023-12-25T13:02:00.002-05:002023-12-25T13:02:05.796-05:00Joy and Peace 2023Today my family and I celebrate Christmas, the birth of Christ. Whether you celebrate Christmas or Hanukkah or Kwanzaa or Diwali or another holiday, I wish you Joy and Peace this Season. DeeEvery Day is a Blessing! Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-74256563357358626472023-11-16T14:13:00.004-05:002023-11-16T14:13:27.862-05:00Living with a Question Mark and Exclamation PointThe Washington Post recently released an interview with Susan Gubar, ovarian cancer survivor and literary scholar. Susan wrote the book Memoir of a Debulked Women, which I read a number of years ago, as well as a number of New York Times articles about her cancer experience. This article was titled Survivor reflects on living with cancer and the ambiguity of remission (Nov 11,2023). As I Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-77319384159047520632023-09-26T11:12:00.001-04:002023-09-26T11:12:43.625-04:00A Radio Interview ! Alka Agrawal and I met through the Rutgers Cancer Institute of New
Jersey's Cancer Community Action Board. Alka is the general manager of
EBC Radio 1170 radio located in Monmouth Junction, NJ. EBC Radio is the largest South Asian radio station in the United States through radio, app and website. They have over 500,000 listeners. Alka invited me to tell her listeners about my Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-90386605382876744992023-09-15T20:27:00.002-04:002023-09-15T20:27:45.730-04:00Ten Years as a Community and ChatOn Wednesday, September 13th the #gyncsm Community celebrated it's Tenth Anniversary as a community and Chat.It seems like yesterday when after taking part in a #bcsm chat on Recurrence I posted this to Twitter. Shortly after, Christina, a ovarian cancer advocate in Texas and I, an ovarian cancer survivor in New Jersey joined together to establish an online community. At first weDeehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-68720872654074606852023-07-28T12:04:00.002-04:002023-07-29T14:52:24.542-04:00The Importance of Obstacles - 18 Years LaterFor the past month or so, I have been on the road traveling and helping family move. As I was catching up on e-mail, I read one from Laura Davis which included writing prompts. I found the perfect prompt for this blog post.
The Importance of Obstacles
“Success is to be measured not so much by the position that one
has reached in life as by the obstacles which (s)he has overcome.Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com1tag:blogger.com,1999:blog-2223285346611922260.post-43227275546654989442023-06-09T13:14:00.005-04:002023-06-09T13:14:56.362-04:00ASCO23 Day 4 (6/5/23) Gyn Cancer Posters, Poster Discussion session & Misc topicsNote: Due to the number of Tweets embedded in this post the page may take some time to load. Monday's sessions included the Gyn Cancer Poster session and the Poster Discussion session. There were a few other sessions that I found interesting and are included at the end of this post. Poster Discussion Session Initial efficacy and safety
results from ENGOT-ov60/GOG-3052/RAMP 201: ADeehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-13443179532567882442023-06-08T14:33:00.000-04:002023-06-08T14:33:17.570-04:00ASCO23 Day 3 :Parp Inhibitors & Late Breaking Abstract sessionWhile there were fewer gynecologic cancer sessions on Day 3, Sunday June 4th there were two important sessions regarding the use of PARP inhibitors and trial results for a drug to teat platinum resistant ovarian cancer drug which may be change practice. Parp Inhibitor Optimal Selection and Toxicity Management Dr Tew - Status updates on Parp useDr Friedlander- Real World Experience in Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-63853902203025077162023-06-07T09:31:00.000-04:002023-06-07T09:31:42.174-04:00ASCO 2023 Day 2: Opening Session, GTD Panel , Gyn Cancer Oral Abstract sessionNote: Due to the number of Tweets embedded in this post the page may take some time to load. Saturday was a busy day at #ASCO23. For me it included live sessions, on-demand sessions and two meetings. Opening Session
Dr. Eric Winer @ASCOPres shares lessons learned from his powerful personal story1️⃣relationship w/healthcare team is paramount2️⃣Science matters3️⃣We all face Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-72905059171682601452023-06-05T17:59:00.003-04:002023-06-06T10:27:31.168-04:00ASCO 2023: Day 1- Cervical Cancer, HIPEC, Antibody Drug Conjugates in Gyn CancersNote: Due to the number of Tweets embedded in this post the page may take some time to load. This year I attended #ASCO23 virtually. Some of the sessions were available live but some were on-demand usually a day later. Many of the Tweets I will share in the next few posts were from those I follow who attended those sessions in person. Friday, June 2,2023Clinical Science Symposium Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-74412273448470437942023-05-19T10:14:00.001-04:002023-05-19T10:14:14.238-04:00Prepping for ASCO 2023 The ASCO Annual meeting begins two weeks from today! This year I will attend virtually. I'll miss interacting with so many amazing researchers and getting to network with some outstanding advocates in the Advocate Lounge. You will catch me tweeting from the Live sessions and retweeting attendee's tweets for those sessions which are On Demand. Once the On Demand sessions are over they Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-81073108855420015062023-04-05T15:08:00.000-04:002023-04-05T15:08:03.580-04:00SGO Annual Mtg 2023: Miscellaneous topics This post completes my coverage of the 2023 SGO Annual Meeting. Below are some tweets on miscellaneous topics from treatments to testing. CryocompressionPrevention of neuropathy in gyn cancer patients. The data are in! Cryocompression therapy works during chemo and prevents subjective neuropathy in patients with gyn cancers. Congrats @MKMontesDeOca @LHavrilesky and @dukeobgyn Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-31940258154110510832023-04-04T09:00:00.028-04:002023-04-04T09:00:00.186-04:00SGO Annual Mtg 2023 : Disparities/ Equity Research In this post I will focus on sharing Tweets and information from the Diversity, Equity presentations I attended at the 2023 SGO Annual Meeting. There were a number of important studies presented to better understand equity issues for those diagnosed with a gynecologic cancer. Two studies focused on Asian / Pacific Islanders Do we need to separate out non-hispanic Pacific Islanders from Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0New York, NY, USA40.7127753 -74.00597280.66856417781606581 -144.3184728 80.756986422183928 -3.693472799999995tag:blogger.com,1999:blog-2223285346611922260.post-8381478303976396702023-04-03T10:28:00.000-04:002023-04-03T10:28:21.460-04:00SGO Annual Mtg 2023 Highlights : Ovarian Cancer
I've gathered together some interesting Tweets about ovarian cancer research studies from the SGO 2023 Annual Meeting. Botensilimab An Fc-engineered recombinant human immunoglobulin (Ig) G1 monoclonal antibody and Balstilimab a PD-1 inhibitor Botensilimab, BOT, a novel innate/adaptiveimmune activator, plus balstilimab(anti-PD-1) in patients with recurrentplatinum refractory/resistant Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-33076744209820442472023-04-02T11:48:00.000-04:002023-04-02T11:48:53.645-04:00SGO Annual Mtg 2023 Highlights: Endometrial CancerThe Late Breaking Abstracts session at the SGO Annual meeting included two important endometrial cancer studies using immune checkpoint inhibitors. Dr Eskander presented Pembrolizumab versus Placebo in Addition to Carboplatin and Paclitaxel for Measurable Stage 3 or 4a, Stage 4b or recurrent Endometrial Cancer : Phase 3 NRG GYO18 Study (Keynote 868)Pembrolizumab is an immune checkpoint inhibitor Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-60116535932145370582023-03-30T16:47:00.003-04:002023-03-30T16:47:54.959-04:00SGO Annual Mtg 2023 Highlights - Participation I returned recently from an exciting and informative SGO Annual Meeting. Over the next few days I will highlight research results that I found most impactful to patients, survivors and caregivers. This blog post will be on participation and will cover how other advocates and I participated in the meeting. The Foundation for Women's Cancer held a Patient Education Forum on Friday.Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-44442203426258284782023-03-19T14:19:00.003-04:002023-03-19T14:19:34.392-04:00SGO Meeting Preparations Thanks to support from my Cancer Center, I am heading south to Tampa for the SGO Annual Meeting on Friday. The theme of the meeting is Patients | Purpose | Progress. I'm so excited to be meet up with other survivors/advocates and to learn from the researchers who are making advances to improve the care of patients diagnosed with a gynecologic cancer. When I arrive on Friday, Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-32494441830883629732023-03-05T19:12:00.000-05:002023-03-05T19:12:54.471-05:00Managing the Risk of Ovarian Cancer - OCRA I've been meaning to write about OCRA's latest consensus statement. So I am happy to share this information/ text from the Ovarian Cancer Research Alliance. Ovarian Cancer Research Alliance (OCRA), with the full endorsement of
the Society of Gynecologic Oncology, has launched a new campaign in the
fight against ovarian cancer, a bold and important direction for
everyone who cares about Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-16496140297086144532023-02-24T10:31:00.024-05:002023-02-24T10:39:12.628-05:00Guest Post : What is Pelvic Floor? I am pleased to share this article about Pelvic Floor by Theresa Wilk Feeley, PT, DPT, PRPC, NCMP, RYT, Pelvic Health & Wellness Center Director at Atlantic Pelvic and and Wellness Center / Physical Therapy. It compliments my post on Have You Considered Pelvic Floor Therapy. Theresa Wilk Feeley The pelvic floor is a group of muscles that span the base of the pelvis, withDeehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0tag:blogger.com,1999:blog-2223285346611922260.post-26147328857629122512023-02-21T13:40:00.002-05:002023-02-21T13:40:08.263-05:00Have You Considered Pelvic Floor Therapy? In 2018, the #gyncsm community chatted about Pelvic Health After a Gyn Cancer Diagnosis. We discussed how treatments for gynecologic cancers affect pelvic health. We also talked about pelvic floor physical therapy and how it can help alleviate many of the pelvic issues including pain and dysfunction such as urine leakage. "Pelvic heath involves the entire area of the bony pelvis, lower Deehttp://www.blogger.com/profile/06931475093653727831noreply@blogger.com0