Friday, September 30, 2011

A Wealth of Research Information Can Be Found on Medify

I was recently introduced to a website called Medify. It is not strictly a cancer research site since it provides research information on a multitude of conditions from alzheimers to diabetes. But it is a well-built site that provides research on all cancer types by consolidating information in one spot. It allows you to search for research on a particular condition. It uses graphics to present results and allows you to compare treatment options , look at studies that other patients have enrolled in and save the information you gather. When I examined it through a cancer survivor eyes, I found it to be a very worthwhile source of information for cancer survivors and caregivers alike.

In their words"Medify has developed powerful technology to mine millions of these studies every day in order to “extract” key information about the patients in each study. Similar patients across studies are combined and their experiences organized around the topics you care about: conditions, treatments, experts, and hot research issues."

The site was launched in July and is continually updated to reflect the latest research.

So go ahead Women of Teal and type in Ovarian Cancer on and the ovarian overview page will show you data based on 5700 studies. You will see the latest research study results on the left, hot treatments in the middle and top treatments on the right. The page also has alternative treatments, institutions that study Ovarian Cancer and conditions that might exist with ovarian cancer such as neuropathy.

Just so that you know I am not receiving any form of payment or compensation for writing about this site . I am just an ovarian cancer research advocate who finds this a neat place to go for pertinent and reliable information. Enjoy your search!

Every Day is a Blessing!

Thursday, September 29, 2011

Petition to End Ovarian Cancer Drug Shortages

In the past few months I have written about chemotherapy drug shortages. I personally know three women whose chemo has been changed or delayed because of the doxil shortage.
Just imagine getting a cancer diagnosis and learning that the drug that could eliminate the cancer is unavailable.

Please go to this petition site sponsored by OCNA and sign the petition. I did!

Every day is a Blessing!

Wednesday, September 28, 2011

I'm Back!

I am back making posts on this blog after being part of one of the most wonderful of all life experiences- the birth of my grandson, John.

Over the next few days I will be posting about a talk I will be giving in November, future ovarian cancer and awareness and fundraising events in the NJ area, as well as new online sources of information about ovarian cancer and personalized medicine.

Also keep and eye out for a new page I will add that will list the latest ovarian cancer research results.

Every Day is a Blessing! I am blessed to be alive- even if my planes are delayed for 5+ hours and my car decides not to start.

Thursday, September 15, 2011

On the back burner

Usually September is a very busy month for me. For the past 5 years every September I have committed countless hours participating in ovarian cancer awareness events- giving talks, hanging ribbons, raising money for research etc. ( September is National Ovarian Cancer Awareness month.) I feel strongly that all people, men and women from legislators to teenage girls, hear about ovarian cancer symptoms, the way the disease affects a women's life, the need for an early detection test and the important research that still needs to be done in order to understand the disease and find a cure.

So far, September 2011 has been different. I have been spending my days away from home helping my daughter and son-in-law with their new son. I am tired but thrilled to be able to help them and get to know my new grandson. My ovarian cancer diagnosis and my advocacy work has been the furthest thing from my mind these past few weeks. I wake up thinking about John not about cancer.

Mentally I feel different too. I have reached another milestone in life - becoming a grandparent. Meeting a grandchild was something I never thought in a million years I would have the opportunity to do 6 years ago. Heck,in July of 2005 I didn't think I would make it to my niece's wedding the following May. And here I am experiencing this wonderful part of life.

My advocacy work will continue. Right now it is just on the back burner.So watch out September 2012- there will be teal toes, teal walks, teal talks and teal ribbons. Just not anything on the 2nd because that is Theresa's special day and not the 6th because that will be John's birthday celebration!

If you are interested in ovarian cancer events in NJ that will occur during the rest of the month please click on the link to my Events page.

Every Day is a Blessing! John is the new blessing in my life.

Saturday, September 10, 2011

John Theodore

I'm a grandma!
John Theodore was born on Sept 6, 2011 in Fort Riley , Kansas
to my daughter Theresa and son-in-law Andrew.
He was born premature and weighed in at 3 lbs, 7 ounces
so he was transferred to a NICU in Topeka for some special care.

He is such a precious little boy and a true blessing in my life!

Every Day is a Blessing! I thank God for blessing our family with this bundle of joy.

Thursday, September 1, 2011

Teal Toes and Ovarian Cancer Awareness Month

Happy September!
Here are my teal toes.
A simple way to raise awareness for Ovarian Cancer awareness month.

PS. My teal ribbon garden flag is hanging in my backyard.

Every Day is a Blessing!