Coming Full Circle with LiveSTRONG and The Cancer Survivorship Research Conference

As many of you know, in 2006 I attended the first LiveSTRONG Survivors Summit. Attending that meeting is what launched my work as a cancer advocate and allowed me to network with a number of other survivors who I continue to be friends with.

This past week once again the LiveSTRONG Foundation played a role in my continued advocacy work. They chose me to receive one of twenty scholarships to attend the Biennial Cancer Survivorship Research Conference: Advancing Survivorship Through Multilevel Collaboration in Atlanta, Georgia. The Conference is co-sponsored by the Center for Disease Control and Prevention, the National Cancer Institute,  the LiveSTRONG Foundation, the Department of Health and Human Services and the American Cancer Society. I am so thankful to the Conference planning committee for including survivors and advocates as conference participants and to LiveSTRONG for providing the informative Survivor Advocate program  and supporting my attendance at this amazing opportunity.

While at the Conference I tweeted in real time using the hashtag #CASurvConf. Below is a sampling  of my posts. You can see even more tweets about the conference if you search on Twitter for the conference hashtag.

Informative session re: big data. Good to see PRO being included. #CASurvConf
— Women of Teal (@womenofteal) June 20, 2014

PRO- Patient reported outcomes

Ganz: survivorship is a chronic disease and we need to use that to move things in Congress etc. #CASurvConf
— Women of Teal (@womenofteal) June 20, 2014

Orby: need to understand cancer characteristics and co morbidity in selfmanagement #CASurvConf
— Women of Teal (@womenofteal) June 19, 2014

Salner: one survivorship visit is not enough . Need to find way to fund continuous monitoring #CASurvConf
— Women of Teal (@womenofteal) June 19, 2014

Mohile: Geriatric assessment can ID patients at risk for increased toxicity. Chemo leads to neuropathy leads 2 falls in older #CASurvConf
— Women of Teal (@womenofteal) June 18, 2014

Goodman : guidelines need to include co-morbidity #CASurvConf
— Women of Teal (@womenofteal) June 18, 2014

Yes we do “@sfuldnasso: Ellen Stovall: "We need a well-funded cancer survivorship program in this country. There's no excuse." #CASurvConf”
— Women of Teal (@womenofteal) June 18, 2014

Although I will not be reporting on every session I attended during the 3 day conference, I will share some insights into the research and topics I found most interesting.  I will cover these topics :

Social Ecologic Methods related to cancer Survivorship - Part 1
Session Highlights -Part 2
Survivorship Guidelines- Part 3
Ovarian Cancer Studies- Part 4
Interesting Interactions - Part 5

Be sure to check back for more information.

Dee
Every Day is a Blessing!