Here are a few more links to interesting stories from the SGO meeting. Thanks to Medpage Today and Cure Magazine for providing these articles.
Delaying Chemo Ups Mortality in Ovarian Cancer
http://www.medpagetoday.com/MeetingCoverage/SGO/37900?utm_content=
* I started my chemo 14 days after my surgery. It was hard but my docs thought it the best thing for me to do.
Low Albumin Ups Surgical Risk in Gyn Cancers
http://www.medpagetoday.com/MeetingCoverage/SGO/37897?utm_content=
* I remember getting albumin after my surgeries.
Thirty Percent of Ovarian Cancer Survivors May Suffer Cognitive Decline After Treatment
http://www.curetoday.com/index.cfm/fuseaction/news.showNewsArticle/id/13/news_id/3671
* I have written about "chemo brain" in the past and continue to experience it.
~~~~~~~
Occupational and Environmental Medicine Journal article:
Evidence Indicates Link for Shift Work , Ovarian Cancer
http://www.doctorslounge.com/index.php/news/pb/36526
Abstract:http://oem.bmj.com/content/70/4/231.short?g=w_oem_current_tabhttp://oem.bmj.com/content/70/4/231.short?g=w_oem_current_tab
Showing posts with label Cure magazine. Show all posts
Showing posts with label Cure magazine. Show all posts
Monday, March 18, 2013
Monday, January 28, 2013
Do you have a Survivorship Plan?
Updated 2/4/13
Last week, I joined the Breast Cancer and Social Media (#bcsm) tweet chat. The topic of discussion was survivorship plans. A few years ago the Institute of of Medicine (IOM) studied what care was provided survivors after they finished treatment . They found that little support was available for survivorsor their doctors regarding medical or pyschosocial issues. The IOM suggested that each survivor on completion of treatment be provided a summary of their treatments and a follow-up care plan.
Kathy LaTour editor of Cure Magazine and author of the recently published article "Planning for Cancer Survivorship" was part of the discussion. She tweeted that only 43% of the NCI comprehensive cancer centers provide their patients Survivorship Care Plans (SCP)when they finish treatment. Since a large survivors are treated at their community facilities a majority of survivors do not have plans. I know I did not get a survivorship plan when I finished treatment although I had discussions with my doctor about what I should look out for and of course I had kept copies of all my scans and treatment summaries . But I was very interested in hearing what she and other participants said about the key items of information that should be in the Plan.
Not only did we discuss what information should be included in a SCP but a few participants shared links to sample SCPs. Just because survivors are not provided personalized SCP does not mean they shouldn't have one. They can develop their own with the help of some great resources. And then the next time you see your oncologist/ radiation specialist you can have them fill in the blanks. Here are some great sources on SCPs.
You can download a sample plan from the article Kathy LaTour wrote.
http://www.curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/2023
Here is a survivorship plan ( pdf file) for ovarian cancer which is part of the SGO Survivorship toolkit.
https://www.sgo.org/wp-content/uploads/2012/09/SGO-Ovarian-cancer-survivorship-care-plan_FINAL_form.pdf
Here is a link to the IOM's fact sheet on Cancer Survivorship Plans.
http://iom.edu/~/media/Files/Report%20Files/2005/From-Cancer-Patient-to-Cancer-Survivor-Lost-in-Transition/factsheetcareplanning.pdf
LiveSTRONGCare Plan / Penn Medicine Oncolink
Answer a few questions and this program will develop a plan that you can discuss with your health care team
http://www.livestrongcareplan.org/
ASCO provides forms that you can fill in with your doctor
http://www.cancer.net/survivorship/asco-cancer-treatment-summaries
Memorial Sloan Kettering provides a concise 2 page form you can fill in with your doctor.
http://www.mskcc.org/sites/www.mskcc.org/files/node/3019/documents/summary-cancer-treatment-and-follow-plan.pdf
So fellow cancer survivors at your next follow-up visit be sure to ask your doctor about a SCP or better yet bring one of the forms with you and ask for help to fill in the blanks. This is one thing we can do to make our survivorship better.
Dee
Every Day is a blessing!
Last week, I joined the Breast Cancer and Social Media (#bcsm) tweet chat. The topic of discussion was survivorship plans. A few years ago the Institute of of Medicine (IOM) studied what care was provided survivors after they finished treatment . They found that little support was available for survivorsor their doctors regarding medical or pyschosocial issues. The IOM suggested that each survivor on completion of treatment be provided a summary of their treatments and a follow-up care plan.
Kathy LaTour editor of Cure Magazine and author of the recently published article "Planning for Cancer Survivorship" was part of the discussion. She tweeted that only 43% of the NCI comprehensive cancer centers provide their patients Survivorship Care Plans (SCP)when they finish treatment. Since a large survivors are treated at their community facilities a majority of survivors do not have plans. I know I did not get a survivorship plan when I finished treatment although I had discussions with my doctor about what I should look out for and of course I had kept copies of all my scans and treatment summaries . But I was very interested in hearing what she and other participants said about the key items of information that should be in the Plan.
Not only did we discuss what information should be included in a SCP but a few participants shared links to sample SCPs. Just because survivors are not provided personalized SCP does not mean they shouldn't have one. They can develop their own with the help of some great resources. And then the next time you see your oncologist/ radiation specialist you can have them fill in the blanks. Here are some great sources on SCPs.
You can download a sample plan from the article Kathy LaTour wrote.
http://www.curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/2023
Here is a survivorship plan ( pdf file) for ovarian cancer which is part of the SGO Survivorship toolkit.
https://www.sgo.org/wp-content/uploads/2012/09/SGO-Ovarian-cancer-survivorship-care-plan_FINAL_form.pdf
Here is a link to the IOM's fact sheet on Cancer Survivorship Plans.
http://iom.edu/~/media/Files/Report%20Files/2005/From-Cancer-Patient-to-Cancer-Survivor-Lost-in-Transition/factsheetcareplanning.pdf
LiveSTRONGCare Plan / Penn Medicine Oncolink
Answer a few questions and this program will develop a plan that you can discuss with your health care team
http://www.livestrongcareplan.org/
ASCO provides forms that you can fill in with your doctor
http://www.cancer.net/survivorship/asco-cancer-treatment-summaries
Memorial Sloan Kettering provides a concise 2 page form you can fill in with your doctor.
http://www.mskcc.org/sites/www.mskcc.org/files/node/3019/documents/summary-cancer-treatment-and-follow-plan.pdf
So fellow cancer survivors at your next follow-up visit be sure to ask your doctor about a SCP or better yet bring one of the forms with you and ask for help to fill in the blanks. This is one thing we can do to make our survivorship better.
Dee
Every Day is a blessing!
Wednesday, March 23, 2011
Uhhh & Ummm
Today I was looking at flowers . There were these really pretty bright red clusters with these thick green leaves. What was the name? I grew these for years in the pots on my patio in Edison. They're called. Uhhh. Begonia's? No. Umm .
GERANIUMS!
How long did it take me to remember the name? 16 minutes. Why do I mention this ? Why do I write everything down and make lists of lists?Chemo brain. I am not really complaining because the drugs that caused this have made me disease free twice. Just want everyone to know that it really is a condition associated with chemotherapy and with so many cancer survivors living longer there are many Ummms out there .
Check out this article in CURE magazine for more info.
http://www.curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/1642
The links on the page a pretty good too. I like the one Reclaim Your Brain.
Dee
Every Day is a Blessing!
GERANIUMS!
How long did it take me to remember the name? 16 minutes. Why do I mention this ? Why do I write everything down and make lists of lists?Chemo brain. I am not really complaining because the drugs that caused this have made me disease free twice. Just want everyone to know that it really is a condition associated with chemotherapy and with so many cancer survivors living longer there are many Ummms out there .
Check out this article in CURE magazine for more info.
http://www.curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/1642
The links on the page a pretty good too. I like the one Reclaim Your Brain.
Dee
Every Day is a Blessing!
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