Monday, September 16, 2013

We Did It! A Gyn Cancer Community is Formed!

As you know in August I agreed to be the co-moderator of the #gyncsm (gynecologic cancer) community tweet chat. Our first chat was scheduled for  Sept 11th.  There was a flurry of e-mails and tweets between myself and my co-moderator and the wonderful doctors who have agreed to advise and help moderate the chat.

I created a blog ( for the community and looked for sources to share during our discussion. Each day Christina Lizaso, my co-moderator and I tweeted about the chat to promote the event and contacted those we thought might be interested in joining us. Christina developed the topics for discussion and a script for the night so we would cover everything we hoped to cover.

Then on Sept 11th at 9pm EST the chat began. It was wonderful to see survivors,  doctors as well as caregivers, organizations and advocates join our discussion. We discussed the importance of seeing a gynecologic specialist, symptoms of our cancers and what they hoped to get from being part of our chat. If you missed joining us you can find the transcript here. In the end we had 38 participants and over 400 tweets using #gyncsm during that hour.

I still think it is pretty cool that we could put this all together in about a month's time, never meeting face to face. We communicated through twitter and e-mail. And we could only do it because of the hard work of my co-moderator  and the support of our doctors Matthew Katz MD, MJ Markham MD, Rick Boulay MD, Don Dizon MD as well as Tamika and Friends and the Society of Gynecologic Oncologists. Thank you to everyone who joined us. We look forward to building a vibrant supportive community for those impacted by gynecologic cancers.

Remember the #gyncsm chat is the second Wednesday of the month at 9pm EST. Looking forward to discussing Genetics and Personalized Medicine at our October 9th chat.

Every Day is a Blessing!

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