DAY by DAY,
HAND by HAND
The #gyncsm
community has once again joined forces with
rare disease patients and health care advocates in the U.S. and around the
world for Rare Disease Day® on
February 28th. Rare Disease Day is an
annual awareness day dedicated to elevating public understanding of rare
diseases and calling attention to the special challenges faced by patients and
the community.
In
the United States, a disease is considered rare if it is believed to affect
fewer than 200,000 Americans. Nearly 1 in 10 Americans live with a rare
disease—affecting 30 million people—and two-thirds of these patients are
children. There are more than 7,000 rare diseases and only approximately 450
FDA-approved medical treatments.
Do you know the gynecologic cancers that
are considered rare diseases by the NIH's Office
of Rare Diseases Research? They are:
Ovarian
Uterine,
Endometrial,
Fallopian
tube,
GTD
(Gestational Trophoblastic Disease),
Vaginal
and
Vulvar
cancers
Rare Disease Day takes place every year on the last day of February (February 28 or February 29 in a leap year)—the rarest date on the calendar—to underscore the nature of rare diseases and what patients face. It was established in Europe in 2008 by EURORDIS, the organization representing rare disease patients in Europe. Rare Disease Day is sponsored in the U.S. by the National Organization for Rare Disorders (NORD)®, a leading independent, non-profit organization committed to the identification, treatment, and cure of rare diseases.
Watch this Rare Disease video
For more information about Rare Disease
Day in the U.S., go to www.rarediseaseday.us.
For information about global activities, go to www.rarediseaseday.org).
To search for information about rare diseases, visit NORD’s website, www.rarediseases.org.
Every Day is a Blessing!
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