Showing posts with label platforms. Show all posts
Showing posts with label platforms. Show all posts

Saturday, December 14, 2019

A Virtual Gift of Resources

It is hard to believe that it has been a month since I last posted. Life can certainly keep one busy.

As I prepare for the holidays, I thought about doing something for my readers.

Here is my virtual gift to you - my choices of the best, most useful, reliable and sound sources of information and support for women diagnosed with cancer.

 Dee's Best Resources List

Best General Cancer Information Sites:
NCI Cancer Types https://www.cancer.gov/types
American Cancer Society https://www.cancer.org/cancer.html

Best Ovarian Cancer Information Sites:
Foundation for Women's Cancer   https://www.foundationforwomenscancer.org/
NCI Ovarian cancer site https://www.cancer.gov/types/ovarian
American Cancer Society https://www.cancer.org/cancer/ovarian-cancer.html
OCRA https://ocrahope.org/


Best Support Platforms:
Online Membership required
Inspire (OCRA) https://www.inspire.com/groups/ovarian-cancer/
Smart Patients https://www.smartpatients.com

SHARE  https://www.sharecancersupport.org/
LiveSTRONG https://www.livestrong.org/we-can-help
Cancer Support Community https://www.cancersupportcommunity.org/online-cancer-support
Survivorship Toolkit https://www.sgo.org/clinical-practice/management/survivorship-toolkit/ 
Support Connection https://supportconnection.org/

Best Hereditary Cancer Information
FORCE https://www.facingourrisk.org (Includes Peer support)
Sharsheret https://sharsheret.org/
National Society of Genetic Counselors http://aboutgeneticcounselors.com/

Treatment Guidelines and Information
NCCN : https://www.nccn.org/patients/guidelines/ovarian/index.html
CA-125 Information https://www.foundationforwomenscancer.org/wp-content/uploads/FWC-CA-125-Levels-Your-Guide.pdf

Tuesday, January 15, 2019

If I Reach One Woman

Over the years I have contemplated whether or not this blog is valuable to others and whether or not I should continue posting to it. I get very few comments - even spam comments - compared to the comments which the #gyncsm community blog receives. 

I think that I write this blog as much for myself as for others. . I have made some great connections through this blog. And it is a place where I can go back and reread information on tests I had or events I attended or how I felt at a specific time in this journey.

I remember how I felt when I was first diagnosed and didn't know much at all about ovarian cancer. Looking for someone who had a similar experience. So  I continue writing.

And then every few years I cross paths on another platform - Facebook group, Smart Patients, Inspire and they ask me if I am the one with the Women of Teal blog. Like this woman who last week responded to a post on another platform that I wrote about the  #gyncsm chat on Vaccines.

So great to see you on this site. I’ve read many of your Women of Teal blogs, but was never able to figure out how to reply with a thank you. So, thank you for your work and dedication to the OVC community. When I was diagnosed with stage 3 c ovc in 2015 ...  I tried to research information about this beast of a disease and somehow came upon your site. Your words helped me to deal with an overwhelming sadness. My doctors told me it would come back. The fact that you recurred and still continued to give back always stayed with me. 
( public response)

There is my answer. I will continue writing this blog.

Dee
Every Day is a Blessing.