Thursday, January 25, 2024

Memories and Change

One thing I can say on this journey with cancer is that Change is Inevitable. 

In 2006,  after I finished treatment for ovarian cancer,  I started attending a gyn cancer support group at  The Wellness Community of Central New Jersey which later became the Cancer Support Community of Central NJ  and is now Crossroads 4 Hope. I was so happy to be with other women who had been diagnosed with a gynecologic cancer. They "got it". I would drive from Edison to Bedminster to touch base with some amazing and inspiring women.  I attended art classes that were offered, educational sessions and my favorite presentation "Bogeyman in the Closet "dealing with the worries of recurrence.

I stopped attending the group during my recurrence and started up again when I finished treatment.

As my advocacy work grew, I not only attended the support group but also made presentations to other cancer survivors too. In 2008, after attending two LiveSTRONG Survivor Summits, I presented Advocacy 101. In 2011, I spoke on Reading Between The Lines in which I offered advice on how to critically read cancer research news.  In March 2012, I presented Survivor to Survivor: Understanding Cancer Research, on understanding how researchers report trial results in journal articles. 

After moving further from Bedminster,  I missed a number of in-person meetings but managed to attend a few every year. I loved this group. There were a few women who had been going for a number of years like me and a new group but it didn't really matter because there was always an atmosphere of strong support and understanding. 

When the Covid Pandemic started all the groups were switched to online Zoom meeting. I once again joined in.  The women in this group were newly diagnosed ovarian cancer and endometrial cancer survivors. I was the "old timer". We spent time talking about treatments, and genetic testing along with Covid testing, masking, vaccinations and our higher risk of contracting Covid. We lost two women during Covid. Although I never met them in person, I still felt their loss. 

In December,  the last meeting of the gyn cancer support group was held. There were 3 women in person and two of us online. The five of us were the core group on Zoom during Covid. There is hope to have some special programs for gyn cancer survivors in the future. In the meantime we can stay in touch through email. I am sad but understand the reasons for stopping and I appreciate the opportunity to have met so many amazing women and their families too, through this support  group.

Today as I was checking my contact list on my cell phone for a friend's number,  I ran across Lois's number, then Dawn's , then Carol's , then Rosemary's, then Diane's.  All these women were friends and their lives were cut short due to ovarian cancer. Some of them almost 10 years ago some two years ago.   I hesitated for a little bit as I came across each name. I thought of the impact they made in my life as survivors, advocates and friends. Wonderful memories of fundraising events sharing delicious food, meetings in the diner, support group meetings and KOH walks. We were all very different and I am not so sure our paths would have crossed if we had not all had a cancer diagnosis but I am so glad they did. 

Then I hit delete. I don't need their numbers, I just need the memories of having them in my life. 

Dee

Every Day is a blessing.

 

Wednesday, January 3, 2024

So Long 2023 - Welcome 2024 !

For those of you have followed this blog know that I don't make resolutions for the new year but rather I make a list of  aspirations.  When I was thinking about what aspirations should be on my list this year,  I realized I still have not visited Maine.  How long has visiting Maine been on my list? I went back and checked my posts and Visiting Maine shows up for the very first time in my first post of 2014. 

From Only In Your State website

It has appeared on the list every year since then - 10 years! And it will stay on the list this year too, along with :

Spend more time with my children, their spouses and grandchildren.
Practice more watercolor painting.
Spend less time on social media and more time connecting in real life.
Continue to play Pickleball, practice Yoga and dance in Jazzercise class 
Continue to take long walks with my dog Amber - a great quiet time in my day.
Continue to do the advocacy work that brings me joy - grant reviews and learning about and sharing research news

What do you aspire to do?  Remember it might not happen right away  but we can always reach for it. 

I've seen some folks pick a word of the year.  I thought that silence would be a good one - sometimes I am so busy doing things that I never experience silence except for when I take a walk with my dog.  I read a list of words a friend share with me and thought boundaries would be a good word too. I need to set better boundaries when it comes to advocacy vs other aspects of my life. Then I thought I would try using a word of the year generator and it gave me :

PROSPER

I like it! I can aim to prosper in so many different areas of my life. Have you picked a word?

Happy New Year! 

Dee
Every Day is a Blessing!