12 Years a Blogger

This post will be my last one of 2019 and it marks my twelfth year writing this blog. This blog has opened doors to so many other advocacy activities and I am grateful for those opportunities.

I had some wonderful advocacy opportunities this year.

I continued to blog for Globeathon. My latest post was advice on Holidays Past .

I have become more active as an ASCO member, too. In June, I spoke with Dr Elizabeth Dickson at the ASCO Annual Meeting in Chicago on the needs of gynecologic cancer patients (http://womenofteal.blogspot.com/2019/06/asco-reporting.html). And in late September, I traveled with other ASCO members to ask Congress for support of three bills that could impact the lives of people diagnosed with cancer (http://womenofteal.blogspot.com/2019/10/asco-advocacy-summit.html). I also became the patient representive on ASCO's  Clinical Practice Guidelines Committee and the Social Media Workgroup.

I continue to  serve on the Scientific Review Board at Rutgers Cancer Center of New Jersey and am also a patient advocate on the Community Advisory Council. In September, I presented my story as an ovarian cancer survivor at the Gynecologic Cancer Awareness event at RCINJ as well as to a class of social work students at Rutgers University. 

Working with other Twitter Cancer Community leaders and social media experts,  I helped author Organizing Online Health Content: Developing Hashtag Collections for Healthier Internet-Based People and Communities 
JCO Clinical Informatics  https://ascopubs.org/doi/full/10.1200/CCI.18.00124


I also continued to co-moderate the #gyncsm Community on Twitter chats with Christina Lizaso and covered some really important topics such as  Maintenance therapies, PARP inhibitors and the origination of high grade serous ovarian cancer. 


I look forward to seeing what 2020 will bring to my advocacy, this blog and the future of ovarian cancer research. 


Dee
Every Day is a Blessing!

Holiday Wishes

I want to wish my followers and friends the Happiests of Holidays. Whether you celebrate Christmas, Hannukah or Kwanzaa may this season be one of Peace, Love and Light.

 

Every Day is a Blessing! 

Dee

A Virtual Gift of Resources

It is hard to believe that it has been a month since I last posted. Life can certainly keep one busy.

As I prepare for the holidays, I thought about doing something for my readers.

Here is my virtual gift to you - my choices of the best, most useful, reliable and sound sources of information and support for women diagnosed with cancer.

 Dee's Best Resources List

Best General Cancer Information Sites:

Cancer.net https://www.cancer.net/

NCI Cancer Types https://www.cancer.gov/types
American Cancer Society https://www.cancer.org/cancer.html

Best Ovarian Cancer Information Sites:

Foundation for Women's Cancer   https://www.foundationforwomenscancer.org/
NCI Ovarian cancer site https://www.cancer.gov/types/ovarian
American Cancer Society https://www.cancer.org/cancer/ovarian-cancer.html
OCRA https://ocrahope.org/


Best Support Platforms:
Online Membership required
Inspire (OCRA) https://www.inspire.com/groups/ovarian-cancer/
Smart Patients https://www.smartpatients.com

SHARE  https://www.sharecancersupport.org/
LiveSTRONG https://www.livestrong.org/we-can-help
Cancer Support Community https://www.cancersupportcommunity.org/online-cancer-support
Survivorship Toolkit https://www.sgo.org/clinical-practice/management/survivorship-toolkit/ 
Support Connection https://supportconnection.org/

Best Hereditary Cancer Information
FORCE https://www.facingourrisk.org (Includes Peer support)
Sharsheret https://sharsheret.org/
National Society of Genetic Counselors http://aboutgeneticcounselors.com/

Treatment Guidelines and Information
NCCN : https://www.nccn.org/patients/guidelines/ovarian/index.html
CA-125 Information https://www.foundationforwomenscancer.org/wp-content/uploads/FWC-CA-125-Levels-Your-Guide.pdf