STRIDE Dashboard Launched

Since my diagnosis, I have followed the statistics for those diagnosed with ovarian cancer. When I was initially diagnosed in 2005,  ACS estimated that the number of women diagnosed with ovarian cancer in NJ would be  ~ 700.  But I often wonder if the number has changed since I was initially diagnosed. I also wondered  where women diagnosed with ovarian cancer lived in NJ.  Were women in some counties being diagnosed more frequently than in other counties? What about women diagnosed with cervical cancer or endometrial ( uterine ) cancer? Did their diagnosis vary by county?

I recently received an email from Dr Anita Kinney (Director of the Cancer Health Equity Center of Excellence)  announcing the launch of the STRIDE Interactive Data Dashboard by the Rutgers Cancer Institute of NJ Community Outreach and Engagement Team and the Cancer Health Equity Center of Excellence. 

"Surveillance, Tracking and Reporting through Informed Data Collection and Engagement (STRIDE) is an interactive data and visualization dashboard (public and institution versions) that includes clinical trials enrollment, biospecimen inventory, tumor registry analytic cases, catchment area information related to the cancer burden, behavioral and environmental risk factors, and demographics.

Features include :

"Cancer Surveillance: Incidence and mortality rates on state and county levels. Cancer screening rates and risk factors are also featured on STRIDE.

User Input Customization: Users can easily filter data to create interactive visualizations. 

Interactive Mapping: Interactive maps include census tract level population and environmental data."

To access the public side of the website please visit  https://published.cinj.rutgers.edu/content/86251f79-09a0-4c9a-b388-361e700af7bf/

I used the site to find data for cancer of the ovary incidence and mortality rate in NJ and downloaded this graph.

 

 

I invite you to check out STRIDE as well as the NJ Cancer Registry website ( https://www.cancer-rates.info/nj/) for information such as incidence per county in map form. I grabbed a screenshot of the cancer of the ovary Incidence Rates (2000-2018). As you can see some counties have higher incidence rates of cancer of the ovary than others. Similar maps will be available on STRIDE.

 

Then I looked at cancer of the cervix for the same years and you can see how the incidence rates in the counties differ from ovarian cancer.

What measures can we take to reach people to raise awareness and treat those diagnosed in those counties?  What causes those counties to have higher rates? Environmental issues?  Socio-economic issues? 

This data will help researchers target areas of my state where services and education need to be increased. 

Does you state have cancer data sites like this one? 

Dee 

Every Day is a Blessing!

Female Cancers World Wide

Thank you Annie Ellis for sharing this image.
Additional worldwide data for cancer may be found at the WHO website:  http://globocan.iarc.fr/Pages/online.aspx       

Dee
Every Day is a Blessing! 

Ovarian Cancer - By The Numbers

-->As disturbing as the statistics related to ovarian cancer are I share them here today because it is these numbers that drive my advocacy to raise awareness,  funds for research and support other women with the disease.

Ovarian cancer will be diagnosed in an estimated

21,290

women in 2015 in the US

Between 2008 and 20012

2,960 

women were diagnosed with ovarian cancer in NJ.

Ovarian cancer is

1.3 %

of all cancer diagnosis in 2015 in the US 

-->

In the past 10 years the number of new cases
of ovarian cancer in the US has dropped by

1.1% each year.

In 2012 there were

192,446 

women living with ovarian cancer in the US.

Ovarian cancer will cause the deaths of an estimated

14,180

women in 2015

There has been

0

significant change in ovarian cancer death rates in the past 10 years.

Between 2008 and 2012  ovarian cancer caused the deaths of

2338 

women in NJ. 

The relative 5 year survival rate
for all women with diagnosed with ovarian cancer in the US is  
45.6 %.

-->

At the time of diagnosis:

15 % of all cases have disease confined to the ovary ( localized) .

19 % of all cases have disease which has spread to the Lymph nodes ( regional)

60 % of all cases have disease which has metastasized. (Distant)

6% if all cases have unstaged disease.

The five-year relative survival rate for women 

with localized disease at diagnosis is 

92.1%

The five-year relative survival rate for women 

with metastasized disease at diagnosis is 

28.3 %.

My Story: When I first heard these statistics I was scared. My gynecologic oncologist told me that statistics are numbers not women. I wanted to be in the part of the number that made it 5 years.  Here I am 10 years later.

I use these stats to make people aware that we need to increase early diagnosis of ovarian cancer and to develop treatments that will provide more late stage women with longer survival

Sources : http://nj.gov/health/ces/documents/report08-12.pdf

--> http://seer.cancer.gov/statfacts/html/ovary.html  

Dee

Every Day is a Blessing!