Showing posts with label Wellness Community. Show all posts
Showing posts with label Wellness Community. Show all posts

Thursday, January 25, 2024

Memories and Change

One thing I can say on this journey with cancer is that Change is Inevitable. 

In 2006,  after I finished treatment for ovarian cancer,  I started attending a gyn cancer support group at  The Wellness Community of Central New Jersey which later became the Cancer Support Community of Central NJ  and is now Crossroads 4 Hope. I was so happy to be with other women who had been diagnosed with a gynecologic cancer. They "got it". I would drive from Edison to Bedminster to touch base with some amazing and inspiring women.  I attended art classes that were offered, educational sessions and my favorite presentation "Bogeyman in the Closet "dealing with the worries of recurrence.

I stopped attending the group during my recurrence and started up again when I finished treatment.

As my advocacy work grew, I not only attended the support group but also made presentations to other cancer survivors too. In 2008, after attending two LiveSTRONG Survivor Summits, I presented Advocacy 101. In 2011, I spoke on Reading Between The Lines in which I offered advice on how to critically read cancer research news.  In March 2012, I presented Survivor to Survivor: Understanding Cancer Research, on understanding how researchers report trial results in journal articles. 

After moving further from Bedminster,  I missed a number of in-person meetings but managed to attend a few every year. I loved this group. There were a few women who had been going for a number of years like me and a new group but it didn't really matter because there was always an atmosphere of strong support and understanding. 

When the Covid Pandemic started all the groups were switched to online Zoom meeting. I once again joined in.  The women in this group were newly diagnosed ovarian cancer and endometrial cancer survivors. I was the "old timer". We spent time talking about treatments, and genetic testing along with Covid testing, masking, vaccinations and our higher risk of contracting Covid. We lost two women during Covid. Although I never met them in person, I still felt their loss. 

In December,  the last meeting of the gyn cancer support group was held. There were 3 women in person and two of us online. The five of us were the core group on Zoom during Covid. There is hope to have some special programs for gyn cancer survivors in the future. In the meantime we can stay in touch through email. I am sad but understand the reasons for stopping and I appreciate the opportunity to have met so many amazing women and their families too, through this support  group.

Today as I was checking my contact list on my cell phone for a friend's number,  I ran across Lois's number, then Dawn's , then Carol's , then Rosemary's, then Diane's.  All these women were friends and their lives were cut short due to ovarian cancer. Some of them almost 10 years ago some two years ago.   I hesitated for a little bit as I came across each name. I thought of the impact they made in my life as survivors, advocates and friends. Wonderful memories of fundraising events sharing delicious food, meetings in the diner, support group meetings and KOH walks. We were all very different and I am not so sure our paths would have crossed if we had not all had a cancer diagnosis but I am so glad they did. 

Then I hit delete. I don't need their numbers, I just need the memories of having them in my life. 

Dee

Every Day is a blessing.

 

Saturday, August 29, 2009

Free Workshop for OC Survivors



The Wellness Community of Central NJ(TWC-CNJ) will host a free workshop for Ovarian Cancer survivors entitled: The Patient Active Guide to Living with Ovarian Cancer. The program will explore means to improve the quality of life during and after treatment by discussing ways to empower women to take a proactive approach to fighting the disease. The free workshop will take place on Wednesday September 23,2009 from 11am to 12:30 pm at the Wellness Community of Central NJ , 3 Crossroads Drive in Bedminster.

The workshop will feature Darlene Gibbon, MD Director of Gynecological Oncology , CINJ; Assistant Professor of Obstetrics, Gynecology and Reproductive Sciences , UMDNJ-RWJUH. Advanced registration is preferred, but walk-ins are welcome. To register, please call 908-658-5400.

"This in depth view of ovarian cancer and its treatments will help women (and their families) be an active partner with their health care team"states Ellen Levine, MSW,LCSW,OSW-C, and Program Director of TWC-CNJ.

The Patient Active Guide to Living with Ovarian Cancer
is part of a series of national cancer-related programs created by the Wellness Community . The Patient Active Guide to Living with Ovarian Cancer was made possible through an unrestricted educational grant from GlaxoSmithKline Oncology.


I attend the gynecological networking group regularly and have participated in a number of Wellness Community programs. This program should be very informative and helpful.

Dee

Every Day is a Blessing!

Tuesday, June 10, 2008

Save the Date- Sept 5, 2008 Stand Up to Cancer

On Sept 5 2008 at 8 pm the program Stand Up to Cancer will be aired simultaneously on 3 networks , NBC, ABC and CBS. The driving force for the presentation is the organization Stand Up to Cancer.

Here is info from a press release provided by Stand Up To Cancer.

May 28, 2008 – NEW YORK, NY/LOS ANGELES, CA: Stand Up To Cancer www.standup2cancer.org), a new initiative to raise philanthropic dollars for accelerating ground-breaking research, launches today through an unprecedented collaboration uniting the major television networks, entertainment industry executives, celebrities and prominent leaders in cancer research and patient advocacy. ABC, CBS and NBC will donate one hour of simultaneous commercial-free primetime for a nationally televised fundraising event to air on September 5, 2008 (8 pm EDT and PDT), aimed at rallying the public around the goal of ending cancer's reign as a leading cause of death.

~~~~~~~~~~
If you are on facebook you can join the Stand Up for cancer group here.
~~~~~~~~~
What a great way to make cancer research a priority! I am pleased that the Lance Armstrong Foundation and the Wellness Community are involved in this initiative.

LivingStrong
Dee