Showing posts with label palliative care. Show all posts
Showing posts with label palliative care. Show all posts

Wednesday, April 5, 2023

SGO Annual Mtg 2023: Miscellaneous topics

This post completes my coverage of the 2023 SGO Annual Meeting. Below are some tweets on  miscellaneous topics from treatments to testing.

 Cryocompression

Prevention of neuropathy in gyn cancer patients. 

 Immune Biomarkers in Locally Advanced Cervical Cancer 

Combo of durvalumab concurrent with radiation produce more tumor-associated T-cells clones. 

Palliative Care  

Higher value and less aggressive care at end of life with early palliative care.

Palliative care referral was impacted by diagnosis and insurance coverage. 

Breast MRI 

Denials in women with hereditary BRCA1/2 mutations with gyn cancer diagnosis.

Funding gaps  

Significant gaps in funding for gyn cancers compared to other cancer types

Obesity  

Japanese study showed obese women have higher risk of uterine cancer

HPV vaccination

Intervention helps uptake of HPV in clinic 

 Tremelimumab, durvalumab, and radiotherapy

Patients with cervical or vaginal cancers had good overall response rates if high in PDL1

In June I will report on  research of interest presented at the ASCO annual meeting which I will attend virtually. 

Dee

Every Day is a Blessing!

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Wednesday, June 15, 2022

News from #ASCO22 - Part 6 News that Caught My Eye in Tweets

Palliative Care

Using Claims-based Data 

 

Sarcoma research

 Clinical trials

Cascade Testing and ovarian cancer

Rare cancer treatments

 

Thanks for joining me as I reviewed ASCO research. I hope to see you at ASCO next year. 

Dee

Every Day is a Blessing!

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Monday, June 8, 2020

Symptoms/Survivorship and the Impact of COVID-19 on Cancer Patients at #ASCO20

This post will complete my series of posts sharing some of  what I learned during the #ASCO20 Virtual Annual Meeting. Survivorship and symptom management research have been two of the important topics that I have followed through the years at the ASCO annual meetings in addition to ovarian cancer research. Below, I have also included a few highlight Tweets from the session on the impact of COVID-19 on cancer patients and survivors.

Early Palliative Care

End of Life Conversations

Geriatric Assessments



Survivorship Session Summary

The Impact of COVID-19 on Cancer Patients 



 I look forward to seeing my advocate and researcher friends next year in Chicago.

Dee
Every Day is a Blessing! 
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Wednesday, March 28, 2018

#SGOmtg Twitter Highlights - Research Highlights Monday, March 26, 2018

Monday March 26th was another day of important presentations at the SGO Annual meeting. Some results may change treatment protocols going forward.

Here are the tweets I found of most importance.

 Cervical Cancer - Minimally invasive surgery *this one may change how early cervical cancer is treated

Ovarian Cancer Debulking Surgery


Ovarian Cancer - Niraparib and Pembrolizumab
Ovarian Cancer - Olaparib and Durvalumab



 Ovarian Cancer- Metastasis and DDR2 experssion

Palliative care
Survivorship / BMI and Risk

Lay navigation


Granulosa Cell tumors


Thanks Dr Dood, Erica Bednar, Annie Ellis, Ali Saiz, Alpa Nick, Rick Boulay, Erin Stevens and Kathleen Schmeler for sharing on Twitter during the meeting.

Dee
Every Day is a Blessing!

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Wednesday, March 15, 2017

SGO Meeting Highlights via Twitter ~ Day 4, March 15

Updated with additional tweets 7:32 pm 3/15/17.

Today was the last day of The Society of Gynecologic Oncology (@SGO_org) Annual Meeting (#SGOmtg). Believe it or not as I type this the snow is falling again.

Here are some tweets I found interesting today.

Patient Preferences:
WRITE Symptoms Study (GOG 259):









Palliative Care:
Ovarian Cancer:

Cervical Cancer

A big shout out to all the researchers, gyn oncs, advocates  and others who tweeted from the meeting.Thanks! 

I look forward to April's  #gyncsm chat (April 12, 2017 at 9pm) recapping this year's meeting.

Dee
Every Day is a Blessing!



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Tuesday, January 14, 2014

"I'm free to be me and you're free to be you"

"This morning I was listening to my I-Pod and heard the song "Free to be Me" by Francesco Battistelli. The line gave me the prompt I needed to write this post. A post I have pondered writing since Sunday night when I read the first of two articles about cancer survivor and blogger Lisa Adams. But before I talk about Lisa let me tell you some things about my blogging experience.

When I was first diagnosed I didn't know any woman who had been diagnosed with ovarian cancer.  So that other women diagnosed with the disease would not feel alone and to keep family and friends up-to-date on how I was feeling I began writing this blog.  It is my way of giving back but I think I also write it for selfish reasons too. It helps me heal. When I write about the long term physical and emotional issues I experience as a cancer survivor it helps me come to grips with the situation.

I know there will always be people who will disagree with what I write here or what I post on my twitter account.  There were people who were unhappy with the treatment choices my healthcare team and I made. At times I may have written about things that are upsetting to others. It is as difficult for me to share the emotion I feel when a friend and fellow patient passes as it is for my readers to read the post. When I write about the frustration I feel with cognitive decline (chemo-brain) due to treatment there may be readers who feel I am just complaining.  After all as we age, don't we become forgetful?  When I describe the fear and anxiety I still feel eight years after diagnosis ,as I wait for CT scan and blood work results, do some readers want to tell me to "get over it already"? I bet some of them do.

At other times my posts have prompted discussions about the usefulness of the CA-125 test for the general population and whether or not Avastin should be approved for ovarian cancer patients. My goal in this blog is always to post the scientific facts and then add a dash of my take on the research. My readers have commented and sent me e-mails about a number of posts I have written. Many newly diagnosed women have e-mailed me about how my story gives them hope. Just as I have learned and been inspired by reading other patient blogs.

 I follow Lisa Adams, a metastatic breast cancer survivor on Twitter ( @AdamsLisa) .   Recently two authors wrote pieces about Lisa. I read the first article by Emma Keller "Forget Funeral Selfies. What are the ethics of tweeting a terminal illness" in the Guardia on Sunday night. Ms Keller thought Lisa over shared on twitter. Is over sharing unethical? When I recurred I wrote about removing my spleen and resectioning my liver, the recovery process, my scars, and each and every chemotherapy treatment including the one that put me in the hospital. I guess I over share on this blog. Are all cancer survivors who write or give talks about their experiences with surgery and chemo and radiation over sharing?  In my opinion, no. Does Ms Keller see any benefit to others? I don't remember reading that but can't be sure.  I would go back and reread the article but it has been taken down.

All I do know is what I have experienced. I have learned from reading about the experiences of other ovarian cancer survivors who had recurrences. I have learned from metastatic breast cancer survivors who I follow and have shared their thoughts on the #bcsm chat. Ms Keller is not forced to read Lisa's blog or follow her on twitter if what she reads makes her uncomfortable. It is similar to if you don't like what you see in a TV show don't watch it .

Ms Keller's  husband, Bill Keller  wrote an Op-Ed in the NY times titled " Heroic Measures" . In the article he tells us his father's death was humane.  Then he writes "my first thought was of my father-in-law’s calm death. Lisa Adams’s choice is in a sense the opposite.  " Yes, I know this is an op-ed piece and that is his opinion.  He has every right to it. But why choose Lisa? Why not one of the other patients who have metastatic breast cancer and share their story on social media. Why not speak to other women treated at Memorial Sloan Kettering or one of the other NCI comprehensive cancer centers? Why not simply talk about the culture in this country to keep on treating at all costs. I tweeted to Mr Keller: " might want 2 join the with (Tues 9:30pmEST) & Wed 9pmET to get a better understanding of EOL/Pall". That would be a great discussion and one we should have.

Later in the article Mr Keller  talks about the cost of aggressive treatment and even mentions the unknown cost of therapy dogs. I remember reading Lisa's tweet about the dogs. I was thinking how neat.  I wish I could train my dog to do that. But I digress. What about the benefit those dogs play in the quality of life of the patients as MSK?  By the way, Mr Keller most therapy dogs and their handlers are volunteers and visit patients at no cost to the patient or hospital.

What we should all learn from these articles is that ultimately the decisions we make about treatment, palliative care and  end of life issues and whether or not we share those decisions on social media are ours alone. No one should judge or ridicule those decisions.

After all  "I'm free to be me and you're free to be you."

Dee
Every Day is a Blessing!
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