Hashtag Collections and Communities - JCOCCI Article

I am so pleased to have co-authored and to have the #gyncsm community and chat be a part of a newly published article in the JCO Clinical Cancer Informatics journal.

Organizing Online Health Content: Developing Hashtag Collections for Healthier Internet-Based People and Communities  

"Cancer tag ontology evolved from patient-centered, disease-specific, Twitter-based chats as a cooperatively designed system that has grown in use from 2011 to 2017. This article provides guidelines, challenges, and opportunities for using hashtags to develop online communities of interest."

Thank you Matt Katz, MD for spearheading this important work for physicians, patients and health care providers. 

Dee                                                                                                                                                      Every Day is a Blessing! 

 

 

 

 

So Many Hashtags

Christina,co-moderator of #gyncsm chat, and I were discussing all the hashtags used during gynecologic cancer awareness month. Christina had compiled a pretty extensive list which I added 7 hashtags too.

Here is our list so far:

#30daysofteal (OCNA)

#actonfacts (@bebrightpink)

#Breakthesilence

#endwomenscancer

#Findthetealineveryday(SROCF) 

#GCAM
#globeathon

#GynCan 

#gyncsm

#HBOCweek

#OvarianCancer  

#ovariancancerawareness 
#ovariancancerawarenessmonth

#shareitseptember (OCRF)

#takeactionnotchances (NOCC)

#teal

#tealisabigdeal 
#Tealmatterstoo

#tealmorethanjustacolor

#Tealsthedeal

#tealtakeover 

#TealTuesday 

#turnitteal 
#turnthetownteal (Turn the Towns Teal)
#turnmyselfieteal

#wearteal

#whyteal 

Did we leave any out? Please let us know. 

Wouldn't it be great if we could unite behind one or two hashtags for next year? 

Dee 

Every Day is a Blessing!

ASCO Knowledge Part IV: Hashtags for Online Cancer Communities

As co-founder and co-moderator of the #gyncsm chat, I was so happy to see #gyncsm supporters Dr. Matthew Katz and Dr. Don Dizon  collaborating  with others to present the poster Disease-Specific Hashtags for Online Communication About Cancer Care at the ASCO meeting.

Cancer patients are online gathering information. Some active communities - #bcsm Breast Cancer Social Media) , #btsm 9 Brain Tumor Social Media) have been in existence since 2011 / 2012.
The #gyncsm was founded in 2013. In July of 2013 Matthew Katz and Patricia Anderson developed and shared online a disease-specific ontology (structured tags without pre-existing use). A finalized version was posted online in November of 2013 and included many of the hashtags talked about in this research.

Using the application program interface, Symplur Signals, the researchers analyzed data from 25 hashtags. They were able to classify the 100 most active users by user type, analyzed the number of tweets and the activity over the time period ( Second Quarter 2013 -Third Quarter 2014.

Poster Highlights:
During that time period researched 77,554 users tweeted with the disease-specific hashtags. 
Two tags, #BCSM and BTSM were the most active and were also used for the longest period of time.
The most active new tags were #aycasm, #gyncsm, #lcsm, #mmsm and #pancsm.
The most active top users were patients.

Overall users were 11% patients, 20% doctors, 3% non-doctor health care professionals, 32% individual, 30% health organization, 1% other and 3% spam.

Right side of the Disease-specific Hashtag poster

The stakeholders using the  #gyncsm hashtag were 33% other individuals, 30% health care organizations, 13% patient, 17% doctor and 7% non-doctor health care provider. As the moderator of the #gyncsm chat I found this data interesting and helpful in planning future chats.

The conclusion of the study was that hashtags could organize the online discussion of diseases and that hashtags can be used by a variety of stakeholders. Further study as to whether the Cancer Tag Otology improves access to accurate information or impact clinical patient outcomes needs to be done.


Dee
Every Day is a Blessing!