Showing posts with label chemotherapy. Show all posts
Showing posts with label chemotherapy. Show all posts

Monday, February 11, 2019

Chemo Angels

Last week I heard about Chemo Angels. Below is some information they provided me about their program. 

The Chemo Angels program offers support to those who find themselves battling a cancer diagnosis and undergoing IV chemo treatment. 
     The angel volunteers support their “buddy” throughout their journey with weekly cards, uplifting messages, supportive words and lots of positive energy. The encouragement the Angels provide helps give patients the comfort and confidence of knowing they are not alone in their fight. 
     The goal of Chemo Angels is to help fuel a positive attitude and aid in the road to recovery.  
    For more information and to submit an application, please visit the web site at www.chemoangels.com

    Some recent 'graduates' of the program have shared these comments:
  • Thank you for your wonderful program - it was a great support during difficult times " (from E.P.)
  • Thank you so much!! I truly appreciate you and the angels!!! I don't know what I would've done without you all.  " (from S.S.)

  • "I would like to thank your organization and the "chemo angels" who took their time to write to me.
  • It was very much appreciated at a difficult time" (from D.R.)
  • Thank you so much! Please let my Angels know how much I was uplifted by their cards and gifts." (from P.L.)
  • Thank you so much for allowing me to be the recipient of your program. My two angels were wonderful. It certainly was uplifting on my journey thru chemo!" (from D.B.)
  • Thank you for everything.  It has been an amazing experience." (from N.L.)
  • Thank you so much for this program which is so uplifting." (from D.B.)
  • Please thank both of the ladies. It was helpful to have a friendly note & inspiring prayer from them." (from E.U.)
I know when I was in chemo I appreciated every card and gift that arrived in the mail. It made me feel I had many people on my side. So check out  www.chemoangels.com whether you are a patient who would love support. Or if you are someone who would like to be an angel for a patient. All cancers types are as long as you are getting IV Chemo. 


Dee 
Every Day is a Blessing!

Monday, December 11, 2017

Chemo Induced Peripheral Neuropathy - Participating in a Clinical Trial

   
Recently my friend, Lynn, shared with me what she had learned during the Foundation for Women's Cancer Ovarian Cancer Survivors Course held in October at the Summit Medical Group. One session on chemotherapy induce peripheral neuropathy was presented by Timothy Marshall, PhD a Professor of Physical Therapy at Kean University ( Union, N.J.). Knowing I have experienced neuropathy she thought I might be interested in a clinical trial he was running and she sent me his contact information.  I contacted Dr Marshall in November to learn more about his trial Chemotherapy-Induced-Peripheral Neuropathy (CIPN), Gait and Fall Risk.

Chemotherapy induced peripheral neuropathy can be numbness, tingling, pins and needles and pain in the toes and fingers. I experience this in my toes and have mentioned it in a few entries in this blog. Dr. Marshall sent me the Informed Consent form for the trial and we set a date to be evaluated in December. 

Last week I went to the Kean University Campus to take part in the trial. This was a relatively easy trial - as trials come -  to participate in. I shared with Dr. Marshall the chemotherapy drugs I had received, their dosage and the number of cycles I had during my initial and recurrence chemotherapy treatments. He asked about the level of exercise I currently take part in and measured my height and weight.

Then the actual evaluation started. The first test was to measure my hand grip strength.  I was asked to squeeze a handgrip dynanometer (3 times in each hand). 
Next after taking off my shoes and socks I was asked to sit on a table. and close and cover my eyes.  Dr. Marshall touched my feet and toes using a Jamar Microfilament - a very thin bendable wire, to assess sensation in my feet.   I was told to respond when I could feel the filament touch various parts of my foot. 

After putting my shoes and socks back on, a BTS G-Walk system was fitted to my waist. The BTS G-Walk system is a wireless tri- axial accelerometer. An accelerometer is an electromechanical device that measures acceleration forces. The system included EMGS placed on both my calves front and back. Electromyography (EMG) is a way to assess how well the muscles are working while I walk. I walked from one side of the room to the other a few times, all the time the Walk system was gathering data.  Lastly, I was asked to perform a ‘Timed-up and-Go' test, in which I had to stand up from a chair, walk about 9 feet, turn around and walk back to the chair and sit back down; this assessed fall risk. 

And in one hour the trial tests were complete.

I enjoyed talking to Dr. Marshall about his research including this study published in the Journal of Cancer Research and Practice Chemotherapy-Induced-Peripheral Neuropathy (CIPN), Gait and Fall Risk in older adults following cancer treatment. 



This trial is currently recruiting so if you are a physician and would like to refer a patient who is experiencing the impact of CIPN or a cancer patient/ survivor who continues to experience CIPN years after treatment or is experiencing CIPN while undergoing treatment, feel free to contact Dr. Marshall at marshati@kean.edu or call 908-737-6177. 

Thank you Dr. Marshall for doing research crucial to improving the survivorship of cancer patients. 

Dee
Every Day is a Blessing! 

Tuesday, September 19, 2017

Day 19 A Month of Teal: Treatments for Recurrence - Chemotherapy/ targeted therapies

Depending on how your disease presents itself on recurrence you may be offered surgery, chemotherapy or a clinical trial. I was offered surgery and chemotherapy or a clinical trial. A majority of women will have chemotherapy but I strongly urge women to consider a clinical trial.

Below is a list of drugs you may be offered:

Chemotherapy Drugs for Recurrence platinum sensitive:
  • Cisplatin or carboplatin + paclitaxel 
  • Carboplatin + gemcitabine
  • Carboplatin + pegylated liposomal doxorubicin
  • Carboplatin + epirubicin
  • Cisplatin + doxorubicin + cyclophosphamide  ( recurrence 12+yrs)

Carboplatin and Taxol are considered the standard for first time platinum sensitive recurrence

Chemotherapy Drugs for Recurrence Platinum Resistant
  • Paclitaxel
  • Topetecan
  • Gemcitabine
  • Pegylated liposomal doxorubicin
  • Pegylated liposomal doxorubicin + trabectedin
  • Etoposide
  • Hexamethylmelamine (Altretamine)
  • Irinotecan
  • Oxaliplatin
  • Vinorelbine
  • Fluorouracil and capecitabine
  • Tamoxifen
  • Pemetrexed
  • Bevacizumab
  • The U.S. Food and Drug Administration has approved the use of bevacizumab ( Avastin)  in combination with pegylated liposomal doxorubicin, paclitaxel, or topotecan.  Two trials OCEANS and AURELIA showed the improvement in PFS ( progression free survival).
  • Olaparib (PARP inhibitor)- maintenance (9/12/17 FDA Approval) / after 3 or more chemotherapy treatments and a BRCA mutation (2014 FDA approval)
  • Rucaparib ( BRCA mutations, 2 or more chemotherapy treatments, 2016)
  • Niraparib(Maintenance therapy BRCA mutation not required)

For additional information about each of these treatments and evidence for their use  please see
https://www.cancer.gov/types/ovarian/hp/ovarian-epithelial-treatment-pdq#link/_789 
https://www.cancer.gov/news-events/cancer-currents-blog/2017/fda-olaparib-ovarian-cancer-maintenance?cid=eb_govdel

or the NCCN guideline page
https://www.nccn.org/patients/guidelines/ovarian/index.html#63/z 

Dee
Every Day is a Blessing ! 

 

 

Thursday, September 14, 2017

Day 14 A Month of Teal: Chemotherapy on Initial Diagnosis

The section below is an excellent description of the chemotherapy drugs used for ovarian cancer. It can be found in full on the  Cancer.net website sponsored by ASCO.

Ovarian, Fallopian Tube, and Peritoneal Cancer: Treatment Options

"Chemotherapy is the use of drugs to destroy cancer cells, usually by stopping the cancer cells’ 
ability to grow and divide. Chemotherapy is given by a gynecological oncologist or a medical oncologist, a doctor who specializes in treating cancer with medication.
Systemic chemotherapy gets into the bloodstream to reach cancer cells throughout the body. Common ways to give chemotherapy include an intravenous (IV) tube placed into a vein using a needle or in a pill or capsule that is swallowed (orally).
A chemotherapy regimen (schedule) usually consists of a specific number of cycles given over a set period of time. A patient may receive one drug at a time or combinations of different drugs at the same time.
Most of the chemotherapy options described below apply to epithelial ovarian cancer, as well as fallopian tube cancer and peritoneal cancer. The type of the chemotherapy used depends on several factors.

  • Adjuvant chemotherapy. This is done to destroy cancer remaining after surgery. This treatment typically consists of carboplatin (Paraplatin) given with paclitaxel (Taxol) or docetaxel (Docefrez, Taxotere) intravenously (IV), which is through the vein. Most of these drugs are given every 3 weeks. 
    Another approach is called “dose-dense” chemotherapy. This is when the drugs are giving weekly instead of every 3 weeks. Some studies show that using dose-dense paclitaxel with carboplatin may improve survival rates compared to giving the drugs every 3 weeks. Talk with your doctor about which scheduling option is best for your situation. (The  recent ICON 8 study reported on at #ESMO17 found no difference in survival between dose dense and every 3 week chemotherapy http://www.esmo.org/Conferences/ESMO-2017-Congress/Press-Media/Press-Releases/ICON8-Trial-Reaffirms-Standard-Dosing-in-Ovarian-Cancer-Chemo)


    In addition, a third way to give adjuvant chemotherapy is to infuse it directly into the abdomen. This is called intraperitoneal or “IP” chemotherapy. This approach can be considered for women with stage III disease after a successful surgical debulking procedure. In previous studies, IP treatment was more effective when compared to intravenous treatment on the every 3-week schedule.

    Studies comparing dose-dense (weekly) IV chemotherapy with carboplatin and paclitaxel to IP chemotherapy with the same drugs show similar outcomes. Doctors are discussing whether the more intense IV approach can replace the use of IP chemotherapy.

    With each of these approaches, doctors consider a variety of factors, such as age, kidney function, and other existing health problems.

    Research studies are underway to see if additional medications, such as PARP inhibitors, should be used. Several studies have evaluated whether adding bevacizumab (Avastin), which is an anti-vascular or “blood vessel growth blocking” antibody, to standard chemotherapy following initial surgery is helpful. In general, bevacizumab used for ovarian cancer has prolonged the time in some patients before the cancer returns; see Latest Research."


    Additional information on chemotherapy may be found on these pages:
    https://www.nccn.org/patients/guidelines/ovarian/index.html 
    http://www.foundationforwomenscancer.org/types-of-gynecologic-cancers/ovarian/chemotherapy/


    Dee
    Every Day is a Blessing!

Saturday, September 12, 2015

Ovarian Cancer Treatment: Chemotherapy

For the majority of  women diagnosed with ovarian cancer chemotherapy will follow surgery.

What is Chemotherapy?
Chemotherapy is the use of chemical drugs to kill the fast growing cancer cells.

For ovarian cancer the standard drugs used on initial diagnosis depends on stage at diagnosis. Below are the recommended chemotherapy treatments as given in the NCCN guidelines.

Stage I
Carboplatin with paclitaxel or docetaxel - IV ( intravenous)

Stage II, III, IV
Paclitaxel with cisplatin IP ( intraperitoneal injection)
Paclitaxel or docetaxel with Carboplatin - IV
Dose Dense  Paclitaxel with Carboplatin  - IV

The chemotherapy is given in cycles every 14, 21 or 28 days. I wrote about how different chemotherapy drugs work in this blog post. (http://womenofteal.blogspot.com/2012/01/how-do-those-ovarian-cancer-treatments.html)

IP, intraperitoneal chemotherapy allows the drugs to be injected into the peritoneal cavity . Studies have shown that treatment with IP / IV increase increases survival by 16 months over IV treatment alone.

Chemotherapy Drugs for Recurrences: 

When a women's cancer recurs she may be offered the same chemotherapy drugs or one of these approved drugs as found on the NCI website.
 Tomorrow's post will be on targeted therapies for ovarian cancer.
 
Dee
Every Day is a Blessing! 


Source:
NCCN guidelines
http://www.nccn.org/patients/guidelines/ovarian/index.html#42
JCO:
http://jco.ascopubs.org/content/early/2015/08/03/JCO.2015.61.4776.abstract

Monday, July 20, 2015

Out with the Ovaries

 Updated 7/21/15
The other day there was a discussion in a Facebook group I belong to about what happens when a women has her ovaries removed ( oopherectomy) prophylactically.  I thought to myself - prophylactically or due to surgery / chemotherapy -  the effects are the same.

I know which side effects I experienced when I  had my ovaries (along with other organs) removed due to ovarian cancer. Even if your ovaries are not surgically removed, they may be damaged due to chemotherapy which can cause menopause and infertility. 

What can happen? Symptoms you may experience when your ovaries are removed include:
  • hot flashes / night sweats
  • vaginal dryness
  • decreased sex drive
  • skin changes
  • sleep disruptions
  • urinary symptoms
  • bone loss (osteopenia/ ) osteoporosis
  • fatigue
  • weight gain 
  • trouble focusing
  • increased risk for heart disease

So how do we deal with these side effects?

There are various ways to help with the symptoms of menopause including hormonal therapies, non-hormonal therapies, complimentary therapies and bioidentical hormones (FDA statement on bio-identicals) .  Be sure to ask your doctor which therapy is acceptable for you to use if you are in treatment or at risk for breast cancer / ovarian cancer.

Some helpful resources include:

This American Cancer Society article on menopause and cancer risk is a good place to turn for information on options you can talk to your doctor about. (http://www.cancer.org/cancer/cancercauses/othercarcinogens/medicaltreatments/menopausal-hormone-replacement-therapy-and-cancer-risk. )

The NCI has a brochure Health Care Maintenance for Women Undergoing Risk-Reducing Ovarian Surgery ( GOG 0199) as well as  a number of online resources on dealing with the side effects of premature menopause. The resources may be found at
http://ovariancancer.gog199.cancer.gov/premature.html

You may also find the Menopause Guidebook from the the North American Menopause Society) helpful. Download it at http://www.menopause.org/publications/consumer-publications/-em-menopause-guidebook-em-7th-edition

Another good source of information is the US National Library of Medicine's Medline Plus site on Menopause . http://www.nlm.nih.gov/medlineplus/menopause.html#cat77

Many of the pre-menopausal women diagnosed with ovarian cancer I have spoken to have gotten limited information on dealing with the side effects of menopause.  It is important that valuable resources like those listed above are part of the conversation that women have with their health care provider when their ovaries are removed prohylactically or due to a cancer diagnosis.

Dee
Every Day is a Blessing!

Monday, November 11, 2013

Scars


Recently the #bcsm community discussed the invisible scars of breast cancer. It was an interesting and fast paced chat on Twitter. Later one survivor described her scars in a blog posted on Nancy’s Point  http://nancyspoint.com/breast-cancer-is-a-string-of-losses/ . I tweeted that gyn cancer survivors have invisible scars too and then decided to write about it here. 

Scars can be both visible and invisible. I have a number of visible scars. I have a scar on my neck from thyroid surgery in 1982. From my initial hysterectomy and debulking surgery in 2005, I have an eight inch vertical scar that begins at my belly button. From my liver resection and spleenectomy in 2008, I have two scars. One that travels 10 inches horizontally across my abdomen below my rib cage and another 4 inch vertical scar that meets up with the scar from my hysterectomy.The scars together have the shape of a capital letter T. 

These scars are starting to fade since my last surgery. But harder to fade are the scars that are invisible to others.These scars are very individual just as every woman diagnosed with ovarian cancer has a similar but different journey with the disease. Some of these scars can be physically painful while others can be emotionally painful. 

My first invisible scar is the neuropathy in my toes. Sometimes my toes are numb and sometimes my toes feel as if someone is sticking a knife into them. No one can tell when my toes are  bothering me but me, unless of course you have caught me taking off my shoe and rubbed my toes. 

I have trouble remembering the names of everyday things. Instead, I describe what it is I am talking about. I have written about this happening a few times in this blog. I read things and reread things and reread things again. I write entries for this blog and leave blank spaces because I can’t remember specific words. It takes me multiple tries to write what it is I want to say. ( Three days to draft, reread, rewrite this entry.) When I give talks I write the speech and then practice it over and over again. I am happy when my family can tell me the word I am missing and help me out.  But at times not remembering has brought me to tears.  I am sure that the invisible scar of chemobrain as survivors call it or cognitive impairtment as professionals call it  is due to the life-saving 16 chemotherapy treatments that have put me in remission. 

Instant menopause has brought it’s own set of invisible scars. Sure I was 50 and not having another child when my ovaries, uterus etc were removed but that doesn’t mean  the physical changes that have occurred due to the surgery are any less painful. Some women in their 20s and 30s are dealing with loosing their fertility. Some of us are experiencing hot flashes sooner than expected and some of us are dealing with issues that are difficult to talk about even with our physicians. 

Then there is the invisible scar due to worrying about a recurrence or waiting for the other shoe to drop. This scar is invisible to others most of the time. It is my own personal worry. Is that gas or bloating? Is that pain under my ribs from scar tissue or is It back? Why am I urinating more frequently? Most times I can talk myself back from the edge by telling myself that I have a plan which includes seeing my doctor frequently enough that if It does come back we will treat It quickly. Sometimes this scar does become visible as “scanxiety”. I am not a pleasant person to be around when it comes time to have a CA-125 blood test or a CT scan. Until the results are in and I get the all clear for 4 more months I am a nervous Nellie. 

I also have an invisible scar from loss. Being in the club of ovarian cancer survivors automatically brings along with it loss.  Support groups and involvement in local ovarian cancer organizations has afforded me the opportunity to share this journey with some pretty incredible women. We have helped each other along the way with hugs, phones calls, e-mails and laughs. But along with this joy there is the pain of their loss. Every death takes it toll. Would I rather to have never met these woman? No not at all. It was wonderful having them in my life. 

Those around us may think that since we aren’t in active treatment cancer no longer impacts our lives. But for those of us living with a cancer diagnosis and treatment may be sad or scared or nervous long after. We may put on a happy face to our family or friends because we don't want them to worry. Sometimes we can deal with these scars ourselves and sometimes we need help from support groups, social workers or therapists. We are not weak when we reach out for help  but rather we are exhibiting strength in recognizing these invisible scars. 

Dee 
Every Day is a Blessing! 

Thursday, July 18, 2013

A Special Member of My Team

This post first appeared on July 11, 2013 in the blog section of the Society of Gynecologic Cancer website.  


A Special Member of My Team



The first day I went for chemotherapy I really didn’t know what to expect. Two weeks earlier I had surgery and learned I had ovarian cancer. I hadn’t had time for a tour of the treatment area so I was a bit nervous.
I was led to my seat in the bright sunny treatment area of my cancer center. My oncology nurse instantly made me feel at ease. She explained step by step what would happen that day, patiently answering my questions, bringing me a glass of water, a pillow and a blanket. She told me how long the infusions would take and which premeds I would be given. Then she accessed my port, drawing blood for some tests. When the results of my blood work came back normal, she explained that she was sending the chemotherapy orders my doctor wrote to the pharmacy. That is when I learned that my chemotherapy drugs were not sitting on a shelf premade but were made just for me right down the hall in the pharmacy.
As the infusion continued I wondered how I would keep straight the daily medications I took along with the medications I would need to take after chemotherapy such as anti-nausea pills. When I mentioned this to my nurse she told me she would have a pharmacist stop by to answer my questions. That is the first time I met Mike. He answered my questions and provided me a chart listing all the medications I was taking and the time of day I should take them. He explained which drugs could be taken together and which must be taken alone or with food.
When I recurred a few years later Mike once again stopped by on my first day of chemo with a new sheet listing the medications I was prescribed and when to take them. Three weeks later when I had an allergic reaction to my chemotherapy Mike was the pharmacist they called. It was calming to see a familiar face ready to get me through a tough time.
Mike is not just a licensed pharmacist but he has gone the next step and become a board certified oncology pharmacist. I didn’t know a certification of that type was given but I am happy that Mike and his experience as an oncology pharmacist is a member of my health care team.
Watch this SGO video “On Your Side: The Gynecologic Cancer Care Team” to learn more about other members of a gynecologic cancer survivor’s health care team.
Dee
Every Day is a Blessing!

Saturday, September 8, 2012

OC Awareness Month #8 -Treatments

Today I will review the treatment that a women diagnosed with ovarian cancer might receive. Of course every woman is different so your actual treatment might differ.

*A women diagnosed with ovarian cancer should see a  gynecologic oncologist ( gyn-onc) . Research has shown that women who receive surgery and treatment by a gyn-onc have higher survival rates.

There are different treatments offered to women diagnosed with ovarian cancer. Such as :

Surgery :
Hysterectomy- removal of the uterus and sometimes the cervix
Oopherectomy - removal of the ovaries and fallopian tubes
Oomectomey - removal of the oomentum the fatty covering of the abdomen
Lymph node biopsy-removal of lymph nodes which are examined for cancer

Chemotherapy:
Chemotherapy drugs disrupt the multiplication of cancer cells or kills them outright.The chemotherapy may be give IV, intravenously, where the drug is introduced into a vein or IP , intraperitoneal where the drug is introduced into the peritoneal cavity. Women may receive a combination of two drugs.

The most common drugs given to women with OC are carboplatin, cisplatin and paclitaxel. Additional drugs may be found on this NCI site http://www.cancer.gov/cancertopics/druginfo/ovariancancer.You might also receive targeted therapy , drugs or biologics. Targeted therapy will affect cancer cells but leave normal cells alone.

Radiation:
Radiation may be used to kill cancer cells in some cases of OC. The level depends on the type of OC cancer and stage of the disease.

 Source : http://www.cancer.gov/cancertopics/pdq/treatment/ovarianepithelial/Patient/page4


Tomorrow the stages of ovarian cancer

Dee
Every Day is a Blessing!

Saturday, April 28, 2012

My Very First Chemotherapy HAWMC 28


The First Time ...Write  a  post  about  the  first  time  you  did  something.  What  is  it?   What  was  it  like?  What  did  you  learn  from  it? 

Before Chemo Became Routine

On July 29,2005 I had a  hysterectomy, oopherectomy and debulking surgery. And I was diagnosed with stage IIIB ovarian cancer. In the days that followed I dealt with pain from the abdominal surgery, I rested, I tried to learn as much as I could about the disease so I could make the decision of whether or not to do a clinical trial and I prayed. One short week after surgery I was back in the hospital in interventional radiology having my chest port-a-cath inserted. 

After gathering all the information I could about the clinical trial and the use of  selenium with carboplatin and taxol I decided to participate.  So two weeks after surgery I walked through the doors at my cancer center to have the first of many treatments. Needless to say, I was not very calm going in to the treatment area. I was moving slowly and carrying my little red pillow with me to cushion my belly when I stood or coughed.  I knew what my schedule was going forward Gail, the trial nurse, had explained that to me . On Monday I would receive IV  selenium and on Wednesday I would receive the carboplatin and taxol. I would do this every three weeks for 6 cycles ( which ended up turning into 9) Being in a clinical trial meant blood would be drawn every hour and continue until a few hours after the infusion was complete.  Interesting that I used to be able to rattle off the intervals but now almost 7 years later the details are a bit fuzzy.

I had not had time to visit the treatment area prior to beginning chemo so I didn't really know what to expect. Carla  was my nurse for the selenium infusion that first Monday. She was very good at calming my nerves and getting me prepared for what was to come. I learned how to use the rest room while dragging my IV pole after me. I learned when lunch was served, where I could get water, what stations were on what channels on the TV, how they would prepare me before inserting the needles into my port and to be prepared to give my name and date of birth frequently during my stay. The first day was long but I made it through. No side effect !

Did that make Wednesdays carbo and taxol infusion any easier? Well maybe just a bit. My problem on Wednesday was the jitters from taking the steroids the night before and the fact that I was so scared of being nauseous or vomiting from the carbo and taxol. I had told my gyn-onc about my fear of getting sick and she assured me that she would give me what I needed so I would not get sick. And once again my nurse, Sue, helped me through the day. She explained about the anti-nausea drug I was given and how it worked. And she explained how to make sure I had a little something to eat before coming to chemo. And she or one of the other nurses was always in close range of me during the time I was actually getting those drugs. She even explained that I should be sure to  take the anti-nausea pills on time when I got home so that I wouldn't be sick.  And the day, ending at 9pm because of the extra blood draws went smoothly. And you know what ? For 9 cycles  I never once vomited. That was a awesome thing in my book. 

So from this first of many chemos , I learned that if I ask questions and voice my concern about my treatments my doctors would do what they could to insure that my needs were met. 

Dee Sparacio

Monday, May 9, 2011

What I Wish I Knew Before My First Chemo

As a volunteer with Cancer Hope Network I have spoken to many women diagnosed with cancer. Many conversations are about their chemotherapy treatments. When a friend called to say she was starting chemo this week I flashed back to how scary it was the night before and day of my very first chemo. It also got me thinking to what I wish I knew before I started chemotherapy.

  • I wish I had a chance to visit the treatment area before that first infusion.( My surgery, port surgery and chemo were all within 10 days.) Ask for a tour. Ask if you will be in a clinic area or in a private room for your first infusion. Where are the nursing stations? How is the temperature in the room?Is lunch provided if you are there at lunch time?Is there wireless internet service?
  • Wear clothing that is comfortable and easily accessible for the treatment. V-Neck shirts if you have a chest port-a-cath. Short sleeve shirts or shirts where the sleeve rolls up easily and won't cut off the circulation in your arm. ( I loved to wear yoga or sweat pants).
  • Ask how long your infusion normally takes. My infusions were very long ( 5+ hours) so I used to pack a tote filled with things to keep me busy. You can only watch so much daytime TV. I found magazines better than books since I had a hard time concentrating. I also brought my I-pod to listen to music ( It also helps drown out the noises and buzzing machines.) Bring a cell phone to stay in touch with family- just remember not to talk too loudly so you don't disturb the other patients. Find out if your center provides DVR's or I-pads or if you can bring your own computer.
  • My center provided pillows and blankets but I had a favorite fleece blanket I brought each time. Just a bit of home to make me feel more comfortable in the recliner.
  • If you are nervous about a particular side-effect such as nausea ask your oncologist to prescribe something to take before you leave for your treatment. If you are really nervous and think you won't sleep the night before ask for a sleep aid or something to calm you down.
  • If you don't have a port be sure to drink plenty of fluids the day before your infusion. Those fluids will help plump those veins and make it easier to find a vein. You'll want to drink plenty of fluids after your chemotherapy infusion too.
  • In my case I received a sheet which listed each IV drug I was given at each appointment but if you are not going to be given this information make note of each drug the nurse gives you at your first treatment. Don't be afraid to ask what is in each of the IV bags and why you are taking it. Write it down. The nurse should ask you to check the name and date of birth on each IV bag to make sure it is for you.
  • You most likely will be given some drugs to take at home after the infusion. Make up a chart with what drugs to take , dosage and when to take. If one is available ask to speak to a pharmacist. Make sure to tell them other drugs - prescription, over-the-counter and vitamins you are taking so that you won't have any drug interactions. Be sure to take the drugs on schedule.
  • When you get home be sure to eat small meals frequently and plenty of fluids. If you are experiencing any side-effects like dizziness , nausea , diarrhea or constipation call you doctor and let them know.
  • Find some comedy shows to watch, humor does make you feel better and less stressed.


Dee
Every Day is a Blessing!




Monday, January 4, 2010

iChemoDiary - Neat iPhone app

I just learned about this great new iphone app - iChemoDiary. It is made by Merck Onoclogy part of Merck and Co. Merck makes that wonderful nausea drug Emend.

The app works on the iPhone or iPod touch and an online version will be available soon.

The app uses a calendar so you can keep track of your chemotherapy appointments, treatments and medications. It also lets you track side effects like fatigue, nausea, pain, temperature etc. It even lets you make reports that you can e-mail to yourself so that you can discuss side effects etc with your doctor or nurse.

I downloaded it just to see how it works and it covers lots of what I would write out by hand on my trusty Rutgers alumni calendar. Wish I had it when I was in chemo.Thanks Merck.

For more info: ichemodiary.com

Dee
Every Day is a Blessing!