Wednesday, April 24, 2019

Upcoming Public Forum on ScreenNJ - May 2019

For the past few years I have attended a number of public forums as part of the Annual Retreat on Cancer Research in NJ. You may read about the one I attended in 2018 on HPV cancers here  and  the one I attended in 2017 about precision medicine here

If you are an cancer advocate or just a resident interested in learning more about screening I invite you to register for this year's Public Forum about ScreenNJ - Cancer Prevention Education and Detection. Presentations this year include Cancer Burden in NJ, Colorectal Prevention and Detection, Lung Cancer Screening , and information on the ScreenNJ State Program. This year's forum is on May 23, 2019 from 8:30 am - 10:00 am at the Rutgers Student Center in New Brunswick, NJ.



Registration is free and may be found at:
www.mpi-evv.com/2017NJCR/2017PFReg.asp

I hope to see you there!

Dee
Every Day is a Blessing! 

Friday, March 29, 2019

Aren't We All "Women Rowing North" - a Book Review

A few weeks ago, I ran across a book online whose title peaked my interest. I added it to my Goodreads list and put a hold on the book at my local library. Last week I picked it up from the library and read it in 5 days. Women Rowing North - Navigating Life's Currents and Flourishing As We Age by Mary Pipher focuses on women who are older but as I read it I found parts that also can apply to women who are facing any challenge - a cancer diagnosis, the loss of a child, divorce etc.

After reading a few chapters I started keeping track of advice and quotes that touched something in my heart and mind. Here are my favorites:

"with age we experience less anger and anxiety. I suspect that can not be because we have less tragedy but rather because we have better coping skills."

"We can feel helpless at times…However we can move toward acceptance and resilience.Our tragedies can teach us to trust and connect us to others."

"Friendship is really not a noun but a verb. Relationships of any kind require attention, energy and time"

"Activism is complicated. …All Activists need to set limits or we can become exhausted and burned out."

 "Women can find ways to be connected and useful"

"grandmothering is complicated. Grandmothering requires great diplomatic skills and self-discipline."

"The culture shapes us and we shape it. As our bodies grow old we must find new ways to stay engaged and empowered. … Let’s push out into the current and row."


In the past almost 14 years as an ovarian cancer survivor I have found that cancer changed me. I have grown , learned and engaged with others. This book has something to offer women in every walk of life and I highly recommend it. 

Dee
Every Day is a Blessing!
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Wednesday, March 20, 2019

SGO meeting Tuesday

Here are the top tweets from the SGO meeting on Tuesday!  

Treating the Whole Patient
Patient Perspective on Clinical Trials


 Maintenance Olaparib


GAS6 and chemoresistance

Immunotherapy



Cisplatin/Gemzar/Pembrolizumab

Next year's meeting is in Toronto. And the gavel has passed to Dr Huh!

Thank you to  @KMKoerten , @Stigetta, @DeannaTeoh , @drcarolbrownMSK , @SGO_org, @DDNewsOnline, @BPothuri for tweeting from the meeting!


Dee
Every Day is a Blessing!

Tuesday, March 19, 2019

SGO Annual Meeting - Sunday/ Monday

Delayed but here are some important tweets from the SGO meeting on Sunday and Monday.


Risk Reducing Salpingectomy and QOL


 Phase 1 Levantinib and weekly taxol in recurrent OC
PARP and ARID1A

JAVELIN  - Avelumab+peg liposomal doxorubicin VS peg liposomal doxorubicin

Phase 2 Pembro and Bev

Minorities and clinical trials

OC Patient Preferences - maintenance therapy

CCNE1 and BRD4 Expression and platinum resistance

 Thank you @KMKoerten , @DKhabeleMD, @ShannonWestin, @Stigetta, @SW_MedReporter, @StephASullivan, @StephanieVBlank for posting from the meeting!


Dee
Every Day is a Blessing! 

Sunday, March 17, 2019

SGO Annual Meeting - Saturday 3/16

Saturday SGO Meeting:

I wish I had been able to hear the SGO Presidential speech by Dr. Agnes Binagwaho (@agnesbinagwaho) .



Financial Toxicity



Genetic Testing
PARP Inhibitors


Cancer Disparity

Leadership - Dr Parkham Zambia


Thank you Yvette WilliamsBrown (@MYvetteWB), Ali Saiz, MD (@AllisonSaizMD), Shannon Westin (@ShannonWestin), Ross Harrison (@RossFH), Erin Stevens (@erinstevensmd), BJ Rimel (@BJRimelMD) and Annie Ellis (@Stigetta) for taking the time to tweet from the meeting.

Dee
Every Day is a Blessing!

Saturday, March 16, 2019

SGO 2019 Annual Meeting Friday - OC Heros



The SGO is meeting this year in Honolulu, Hawaii to celebrate it's 50th Anniversary. I will be following along from NJ via Twitter and the #SGOmtg and #SGOHawaii50 hashtags.  I plan to blog each day of the meeting ( March 16-19) the tweets I find of interest to my followers.

On Friday the members started to arrive and there were a number of preliminary workshops as well a survivors course presented by the Foundation for Womens Cancer.

Friday night's activity included the OC Heros Awards presentation and dinner. The guest speaker was Shannon Miller and the award winners were  Ryan Mitstifier-Walton, Nurse Paula Anastasia and Dr. Shannon Weston. I am so pleased to see Dr Weston win this award. She has been an amazing health care moderator of the #gyncsm community.





Thanks Annie Ellis and Dr Erin Stevens for the great Tweets!

Dee
Every Day is a Blessing!

Monday, February 25, 2019

Rare Disease Day 2019



February 28th is Rare Disease Day® .  Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges faced by patients and the community.
 
In the United States, a disease is considered rare if it is believed to affect fewer than 200,000 Americans. Nearly 1 in 10 Americans live with a rare disease—affecting 30 million people—and two-thirds of these patients are children.
Do you know which diseases are considered rare diseases by the NIH's Office of Rare Diseases Research? The following ovarian cancers are considered rare:


To learn more about any of those ovarian cancers just click on the name above. 

Rare Disease Day takes place every year on the last day of February (February 28 or February 29 in a leap year)—the rarest date on the calendar—to underscore the nature of rare diseases and what patients face.  It was established in Europe in 2008 by EURORDIS, the organization representing rare disease patients in Europe. Rare Disease Day is sponsored in the U.S. by the NationalOrganization for Rare Disorders (NORD)®, a leading independent, non-profit organization committed to the identification, treatment, and cure of rare diseases.
 



 If you are on social media and have a rare disease you can use this template and show your stripes on this Thursday , February 28th. 

My stripes are rare. I have _____, a #raredisease. #ShowYourStripes #RareDiseaseDay {upload photo of yourself}

I'll be sharing this blog post as a way to raise awareness. 

Dee
Every Day is a Blessing!