Monday, July 30, 2012

Check out the WEGO Health Activist Speakers Bureau



I just applied to the WEGO Health Activist Speakers Bureau and I thought some of my fellow bloggers and cancer advocates might be interested in learning more about it as well – it’s a great way for Health Activists to share our stories, raise awareness and get the word out about the work we’re doing.

Members of the WEGO Health Activist Speakers Bureau receive exclusive invitations to present at conferences, speak to members of the media, and be featured on WEGO Health.

Interested in joining the WEGO Health Activist Speakers Bureau? Apply today! It only takes a few minutes and they’ll email you as soon as they have opportunities relevant to you and your interests.

Dee
Every day is a Blessing! 

Friday, July 27, 2012

Seven Years and Counting

I am really thrilled to be posting this entry.

On Sunday, July 29th I will celebrate my 7th "cancerversary".

I can still remember the words Dr Lorna Rodriguez said to me in the recovery room of RWJUH late in the morning of Friday July 29, 2005. She said,  "Dee, I am sorry. I found ovarian cancer. You were stage 3B. But I will do my best to treat you and make you well. " And she and Dr . Gibbon did just that not once but twice. They are my lifesavers. Thank you Dr. Gibbon and Dr Rodriguez.

And of course I can't forget to thank the best caregiver in the world my husband, Nick, my children Terry and Matt and all my family and friends. Your love and support helped me through the toughest parts of this journey. I Love You All.

Dee
Every Day is a Blessing!

Thursday, July 26, 2012

Stress and Bone Metastasis

In the past I have written about stress and ovarian cancer. Once in "Stress and Ovarian Cancer - NCI Bulletinand again in "Integrate Cancer into the Tapestry of Who You Are"

Yesterday @RoswellPark tweeted about stress and metastatic breast cancer. Because of the genetic connection between ovarian and breast cancer I followed the link to this press release from Vanderbilt University Medical Center titled "Stress fuels breast cancer metastasis to bone"  . 

I don't usually write blog posts from press releases so I looked further and found the team of researchers also published in the PLOS/Biology and online peer reviewed journal in an article titled "Stimulation of Host Bone Marrow Stromal Cells by Sympathetic Nerves Promotes Breast Cancer Bone Metastasis in Mice." Feel free to read the entire article ( complete with graphs, photos and citations) online. 

In a nutshell, Vanderbilt Center for Bone Biology researchers using a mouse model for bone metastasis found through experimentation that making the sympathetic nervous system ( In humans stress and depression activate the system.) active in mice promoted breast cancer cell colonization in the bone marrow of the mice .  Their results showed that the stress activated RANKL ( a protein found in the bone that stimulates the break down of bone ) and helped to promote the cancer cell migration. They also showed that chronic stress in vivo can be blocked by introducing the beta-blocker Propranolol. Their conclusion was that the use of Beta blockers and drugs that interfere with the RANKL signaling like Denosumab, a drug approved to build bone mass could increase patient survival if used as adjuvant therapy. 

I am sure that human trials will be forthcoming since beta -blockers are generally safe and used by many for blood pressure control and migraines prevention. 

It is research like this that is so exciting to read about. 

Dee
Every Day is a Blessing. 

Tuesday, July 24, 2012

Secondary Cancers and Recurrent Cancers Do Make Us Worry

It was a busy weekend and I have gathered a number of different ideas for blog posts.  I will begin with some comments prompted by an article in the New York Times Well section. The article by Steven Petrow, a testicular cancer survivor,  was titled "New Cancer Threat Lurks Long After Cure". You can visit here for the entire article.

The article began with a discussion of Robin Roberts latest diagnosis of myelodysplastic syndrome a secondary cancer most likely caused by the breast cancer chemotherapy treatment she was given. I know a number of survivors who have had multiple cancers. And studies have shown that treating cancer with chemotherapy or radiation can lead to other cancers. This is especially true of child or young adult survivors.  But as the article stated with 14 million cancer survivors in the US and since those diagnosed with cancer  are living longer, the threat of a secondary cancer is real.

My concern is not so much for a secondary cancer but like so many ovarian cancer survivors my concern is a recurrence of the same type of cancer. Ovarian cancer is one of those cancers that is, for lack of a better word, is notorious for coming back. I have had one recurrence already in 2008, two and a half years after finishing treatment for stage III B ovarian cancer. My CA-125 was normal and it was a CT scan that picked up the growths on my liver and spleen. Do I worry that it might recur again?  Nope. Honestly? Yes, I do. Do I think about it all the time? No.  I've learned over the years, a number of good techniques to get me through those tough times. My Gyn-Onc and I have put together a good follow-up plan of check-ups and CA-125's and CT's to catch it early.

So do I worry or think about other cancers?  Not too often. Do I have an annual mammogram? Yes, I do . Do I worry about going for a mammogram like I do a CT scan or the CA-125 blood test. No. Not sure why but Breast Cancer does not scare me. If I could handle treatment for ovarian cancer  twice I know I can deal with any treatment breast cancer could require of me. On a good note, I just went for my annual mammogram and it was clear.

Mr Petrow brings up in his article that 58% of cancer survivors suffer from anxiety, stress, depression and post traumatic stress syndrome. I applaud Mr Petrow for bringing that number to light. I was dealing pretty well until the recent loss of a friend's niece and  two wonderful women from my support group within months of each other. Over the years I grew to know these women for more than their cancers but their love of children,  their families , God, and the simple things of life like holding hands. So after 6+ years as a cancer survivor, I needed to find some extra support. And I did. I feel much better and feel I am getting back to normal - another new normal.

So if you are a survivor do not be shy about talking to your physician or nurse about what you need physically and emotionally to make this journey  smoother.


Dee
Every Day is a Blessing!

Thursday, July 19, 2012

Panera Bread's - Operation: Lemon-Aid for Kids

I love the soups, breads and salads at Panera Bread. And I especially like that some of the Panera's in NJ are part of an event to raise funds for the Cancer Institute of New Jersey's ( CINJ) Division of Pediatric Hematology/ Oncology.

The Operation: Lemon-Aid for Kids event takes place on July 21st from 10am to 2pm.   Panera Bread will offer their 9oz  delicious ( I love their lemonade) to customers who donates $1 to CINJ. Check out this Panera Bread web page for locations involved in the event.

You might just see me at the North Brunswick store.


Dee
Every Day is a Blessing!

Wednesday, July 18, 2012

12th Annual Sandy Rollman Ovarian Cancer Foundation Gala




The Sandy Rollman Ovarian Cancer Foundation cordially invites you to:
TEAL PASSPORT: Sandy Rollman Ovarian Cancer Foundation 12th Annual Gala & Auction In Memory of Lisa Loonstyn-Golden
Arrival Time: Saturday, September 15 at 7:00 PM
Destination: Houston Hall, Hall of Flags (3417 Spruce Street, Philadelphia, PA)
Pilot: Lauren Hart
Event Chairs: Mr. & Mrs. Joseph Kaufmann
TRAVEL ITINERARY
Leg 1: 
Director  Angela Carlino Excellence in Ovarian Cancer Research/Care Award to Robert Burger, MD, Director of the Women’s Cancer Center at Fox Chase Cancer Center
Leg 2: Donna Webb Spirit of Survivorship Award to a member of the Sandy Rollman Ovarian Cancer Foundation
Leg 3: The first Lisa Loonstyn-Golden Sunshine Award to Nicole Beegle
Leg 4: Take a tasteful journey with authentic cuisine and  drinks from different cultures, compliments of Carlino's Specialy Foods
Leg 5:
Bid on live and silent auction items from around the world

Travel Attire is "cocktail" and "teal tie" optional. For more information email robin atrobin@sandyovarian.org. Register online Here.  If you cannot attend and would like to make a donation, click here.
Boarding passes are $125 per person
Boarding passes for those 25 and under are $60 per person
All proceeds benefit the Sandy Rollman Ovarian Cancer Foundation

For more information, visit www.sandyovarian.org

Dee
Every Day is a Blessing!

Tuesday, July 17, 2012

Reaching out to the Halls of Congress from NJ

This morning many of my fellow Ovarian Cancer survivors  will be heading to Capital Hill to talk to their Senators and Congressmen. Although I am unable to make the trip this year, I did send e-mails to NJ's senators and my representative.

Here is the e-mail I wrote:


I am a NJ resident and 7 year Ovarian Cancer survivor thanks to the
doctors at the Cancer Institute of New Jersey. Although I am not able to
visit you in person today,  I am requesting that you support the Ovarian
Cancer National Alliance's initiative to fund innovative research;
increase awareness and ensure parity in drug coverage for ovarian cancer
patients.
* Recognize Ovarian Cancer Awareness Month by becoming a sponsor of the
House Resolution; contact Molly Ahearn in Representative Israel's office.

* Support appropriations of $20 million for the Ovarian Cancer Research
Program for Fiscal Year 2013.
* Become a co-sponsor HR 2746, the Cancer Drug Coverage Parity Act.

Taken together, these actions will help our nation make progress toward
identifying ovarian cancer at its earliest stage and reducing mortality
from the disease.

Sincerely


If you get a chance please go to this site and send your senators and representatives an e-mail urging their support.

http://www.capwiz.com/ovarian/issues/alert/?alertid=61558216&type=CO


Dee
Every day is a Blessing!