Thursday, October 29, 2009

Travelin' Mom













Last Thursday, I got on a plane at Newark airport for Manhattan. No not the Manhattan across the Hudson from NJ but Manhattan, Kansas- home of the Kansas State Wildcats and my daughter and her husband. We flew first to Dallas and then on a small American Eagle flight to Manhattan.

Walking down the ramp to the runway- it is a very small airport- I left my cares behind.

I even surprised myself. Outside of posting some info about the slashing of DOD funding for Ovarian cancer research I did not think of having cancer or what it is like to be a survivor or when my next appointment would be.

I enjoyed each regular old day. I walked Silvio their cute pug around the neighborhood. When Silvio found a snake skin on the road, I wondered what type of snakes they have in Kansas. I am pretty sure some are poisonous . We checked out the wildflowers, sunflowers, that grow on the edge of Theresa's property . I used the Kansas Birds book to identify a red hawk that was flying overhead. I haven't used one of those field guides since teaching at St Francis.We picked and carved pumpkins. Terry showed me how she roasts pumpkins seeds. MMMM good. I even tasted a local Manhattan beer- a pretty good stout with a name like Buffalo Sweat. I loved the sunset you can see from her large dining room window. But I did have to come back to NJ.

So, yesterday morning on our return flight from Manhattan ,the captain announced" We are first in line for take-off" . I chuckled. We were the only flight in line for take-off... actually we were the only commercial airplane at the airport. Did I say the MHK was a very small airport?It is nice to be in a place where you are the only flight in line or the only game in town.( When we flew out of Newark we were 18th in line. )

It is difficult at times having children who live so far away. (Thank goodness for cell phones. ) But distance also gives me a chance or an excuse to visit any time they like . Well, maybe that really is, any time I like.

Those trips give me a new "normal" and a break from being a person who had cancer. I am just a travelin' Mom.

LiveSTRONG

Dee
Every Day is a Blessing! I am blessed with the opportunity to travel to see my children.

Wednesday, October 21, 2009

Why I Chose a Clinical Trial

A few months ago I was asked if I wanted to talk to a reporter about why I chose to be part of a clinical trial. I agreed to be interviewed because I strongly believe that cancer patients as well as people with other chronic diseases should consider clinical trials at all stages of their treatment.This is how progress is made. Many people think that a clinical trial means being a guinea pig. Well I did have more blood tests than a person on standard chemotherapy. But the care I received and the feeling that I could be a part of something that could change the lives of other cancer patients made all those extra needle sticks ok.

My story became part of the Top Doc issue of NJ Monthly magazine . The article is called On the Cutting Edge- Patients in Clinical Trials of new drugs must weight risk vs reward.
Thank you Ken Terry for such a well researched and well written article.

LiveStrong
Dee
Every Day is a Blessing!I am blessed to be a patient of Dr Rodgriguez and Dr Gibbon at the Cancer Institute of NJ.

Tuesday, October 20, 2009

Another Kaleidoscope

Here is some info from OCNA about a great TV show to raise awareness about women's cancers. IF you are in the DC area and are an Ovarian Cancer survivor you can order discounted tickets through OCNA.

Kaleidoscope is a holiday entertainment variety special featuring Olympic skating champions and GRAMMY Award-winning music artists. Viewers will be thrilled with the historic return of the legendary Scott Hamilton and Dorothy Hamill matched with fellow cancer survivor Olivia Newton-John.
Kaleidoscope addresses issues surrounding women and cancer through an extraordinary collaboration with 10 advocacy partners.
The LIVE event will be held Monday, November 16, 2009 at the Verizon Center in Washington, DC.
There is no charge for the tickets, but a $2 Ticketmaster convenience fee is required for each ticket ordered on line. To order your tickets for the live performance at the Verizon Center in Washington, DC, click here and insert the passcode OCNA into the Promotions and Special Offers Box.
In an effort to raise awareness about ovarian cancer, if you and/or your family and friends are attending the LIVE event, we ask that you please wear TEAL. Hope to see you there!

The other causes supported by the show include- ASCO, NCCS,ONS, C3, GCF, OCNA , the Leukemia and Lymphoma Society.


LiveSTRONG

Dee
Every Day is a Blessing!


OCNA introduces Symptom Diary

Here is information that I received in an e-mail from the Ovarian Cancer National Alliance.

"In a bold effort to provide women and their doctors with better information about how and when to take the necessary steps to obtain an early diagnosis for ovarian cancer, the Ovarian Cancer National Alliance has taken the lead in posting guidance for diagnoses on its web site. The Interim Practice Guidance, endorsed by prominent specialists in the field of gynecologic cancer, marks the first time ovarian cancer diagnostic protocols have been made available to the public. In addition to the guidance, a Symptom Diary that helps women measure the persistency and severity of their symptoms (initially developed in the United Kingdom by Ovarian Cancer Action), has been reproduced in conjunction with the Gynecologic Cancer Foundation, with permission for use in the United States.
For the full article and a downloable Tool Kit, visit www.ovariancancer.org/diary."

This is a excellent way for women to record their symptoms and have those important conversations with their doctors,

LiveSTRONG
Dee

Gynecological Cancer Awareness Weekend in DC


The weekend of November 6-8, 2009 is the first Gynecologic Cancer Awareness Movement Weekend and GCF’s half marathon/5K/1 mile walk.

Gynecologic cancer doctors will be able to attend a CME .
On Saturday November 7, 2009 at the Mandarin Oriental Hotel, cervical, endometrial and ovarian cancer survivors and their families , advocates and friends will be able to attend concurrent survivors courses. (I have attended a Survivor Course in NYC and it was very informative. For survivor course info click here.

Then on Sunday November 8,2009 at 7am over 3,000 runners and walkers in Washington, DC will race for awareness of gynecological cancers. For race info click here.

I will be attending my son-in-law's sister's wedding so I will be unable to attend. It should be a wonderful weekend.

LiveSTRONG

Dee
Every Day is a Blessing!

Saturday, October 17, 2009

My Cousin is Running for Town Council


My cousin Ronald Knecht is running for the Town Council in Kenilworth ,NJ. I am very excited for him and hope on election day that he is voted into office. He grew up in Kenilworth , lived for a time in Edison and moved back to Kenilworth. I think the small town feel is what drew him home again.
Here is an article about his campaign and the photo above is a flyer about the two Democratic candidates for Kenilworth.

Good Luck Ron!

Livestrong
Dee
Every Day is a Blessing!

Wednesday, October 14, 2009

Dancing for a Cure

Want to learn to dance or just like to dance ? Check out this fun event and raise funds for the Teal Tea Foundation. The mission of the Teal Tea Foundation is to help raise ovarian cancer awareness and to support research efforts focused on early detection,treatments and a cure for ovarian cancer.

Dancing for a Cure
Latin and Ballroom Dance Exhibition and Lessons
Featuring Evgeny Dyachenko and the Siti Dance Studio
Sunday November 8,2009
1:00pm- 5:00pm
Nottingham Ballroom
200 Mercer Street
Hamilton, NJ

For ticket Info Contact
www.tealtea.com
or Amy Cellini
609-234-5153

Door Prizes
tickets $45 per person
$50 per person at the door
Premium Seating $75 per person
~~~~~~
Dee
Every Day is a Blessing!