Wednesday, September 30, 2009

An Evening of Surprises at my Seton Hall University Talk


Late yesterday afternoon I drove up to Seton Hall University in South Orange NJ. This would be the second time I would tell my Ovarian Cancer story "Woman of Teal" to the student nurses and staff at the nursing school. I met with my cousin Marion, a Dean of the Nursing School, in her office and we walked into the room where I was giving my talk.
There on the left side of the room was my cousin Judy, her daughter Brittany and a family friend Agnes. They knew my story but came to support me just the same.

Then as we were setting up the computer and projector, in walked a former student of mine from St Joe's. Paul is a junior at Seton Hall and the last time we saw each other was at the Livestrong Challenge in Philly - he rode over 70 miles. He couldn't stay but I was pleased that he took the time to stop by and chat.

Then there was a tap on my shoulder and there stood my nephew Kevin. He and Alycia had moved to Kentucky in July but he travels back to NJ occasionally to work on the medical helicopter and with the Jets ( yes - those JETS!). We've spoken on the phone but this is the first time I saw him since they moved.WOW! And all this before I even started to talk.

I think the talk went well. The students and staff asked questions when I was done. Most questions were medical related and then one of the nursing instructors asked "How do you do it? How do you stay positive when you know the cancer can come back?" I thought a moment and said," I have a wonderful family and great friends to support me and that I truly believe that every day is a blessing " And that is the truth.

LiveSTRONG

Dee
Every Day is a Blessing. And I had lots of special surprise blessing at my talk.

Tuesday, September 29, 2009

From 1992 to today

In 1992 I taught math and science at St Francis Cathedral School in Metuchen.

Yesterday, I received a pretty butterfly note in the mail from J., a former student. She wrote that she read the article in the Sentinel newspaper about the teal ribbons and awareness campaign that I had done in Edison and that I was in her thoughts and prayers.

How sweet is that? All these years later to still remember her teacher and to take the time to write. Thank you J.

LiveSTRONG
Dee

Every Day is a Blessing.

Saturday, September 26, 2009

KOH Avon Walk with "Carmella's Kids"




These are Carmella's kids- my cousins, my husband and two close family friends. We all got together this morning to participate in the last Kaleidoscope of Hope Foundation Walk on the boardwalk in Avon, NJ. The walk raises funds for cutting-edge ovarian cancer research.

I got there early to help register people for the walk. This is my third year helping with registration so things were hectic, with lots of people still registering in person even though we have online registration, but it went smoothly. When I was done I joined my cousins on the walk. I walked around a mile and a half. Many of my cousins walked 5 miles. Hurrah for Erica,John,Jack, Brit, Fred, Chelsea, Morgan and Ali. After the walk we all went to Vic's in Bradley Beach for lunch. Now that is great thin crust pizza! As we walked out of Vic's I met a women who had done the walk and had put up teal ribbons in Metuchen. We had only e-mailed so it was nice to put a face to a name.

All I can say is that I am truly blessed to have my husband , cousins, as well as Marylou and Agnes (two very compassionate nurses and close friends) in my life. They really help me to LiveSTRONG.

Dee
Every Day is a Blessing. I was really blessed today by cousins and friends.

Friday, September 25, 2009

Murphy's Trip back to Virginia















When my son broke his collar bone last month, Nick and I drove down to see him. Being in a brace and unable to move his right arm made it difficult for him to take care of his dog, Murphy. Murphy is a beagle / hound mix Matt adopted from the local pound . Being the dog lovers that we are , we took Murphy home with us. He spent the next 4 weeks having fun playing with our neighbors dogs, chasing the bunny rabbits in the back yard and running up and down the steps trying to keep his rope toy and a tennis ball in his mouth at the same time. With tennis courts at the end of our block,we had a steady supply of toys for him. Murph dog was a fun guest to have visit- even if it did meant we had to cut our Rutgers football tailgating short. With Matt healing and feeling stronger we knew we would have to return Murphy to his home in Blacksburg.

So on Thursday we left early in the morning and headed to Blacksburg. On the way down we stopped at our usual Mc Donalds at exit 298 off of interstate 81. We went through the drive-up window and ordered figuring we would eat in the car and then take Murphy for a walk. When we drove up to the window to pay they saw Murphy in the back seat and handed us some dog bones along with our change. That was really nice of them. Since it was a nice day we decided that instead of eating in the car we would eat at the outside tables they have. A gentleman wearing a McDonald's shirt walked by us to go inside then came back out and asked if we needed water for our dog. Very nice indeed. Murphy drew a lot of attention as people said how cute he was and how well behaved he was. I couldn't agree more.

Murphy was so excited when he walked into the apartment and saw Matt!



LiveSTRONG
Dee
Every Day is a Blessing!

Wednesday, September 23, 2009

Looking Forward to the Avon Kaleidoscope of Hope Walk

Saturday is the last Kaleidoscope of Hope Walk. It will be held on the Boardwalk in Avon, NJ. What better place than the shore to spend a Fall morning. I will be helping out with registration again this year and will also get a chance to walk. The past two years I had to leave after registration was done to attend a home RU football game. Those were busy Saturdays.

I'm really looking forward to this year's walk because my husband, cousins and friends will be walking as part of the team Carmella's Kids. Carmella, my cousin, also had cancer. It means so much to me that they honor their mother and support me.

You can still register or donate at www.kohnj.org . Choose the Avon link.

I will also get a chance to see MA again. I met MA in person for the first time today at the Wellness Community Central Jersey's "Patient Guide to Ovarian Cancer "program. My gyn-onc, Dr. Darlene Gibbon, CINJ, answered questions about ovarian cancer from the latest treatments to clinical trials. MA and I met on facebook as members of a group exclusively for ovarian cancer survivors.

LiveSTRONG

Dee
Every Day is a Blessing! Today I am blessed to have such supportive cousins and friends and to have met MA in person.

Saturday, September 19, 2009

Survivor stories and Ovarian Cancer News

September is a busy time for me but I wanted to make sure I shared some important news articles about Ovarian Cancer and two touching stories about survivors.

Diabetes Medication May Get New Life as Cancer Treatment
"In a study in mice, low doses of the drug, combined with a widely used chemotherapy called doxorubicin, shrank breast-cancer tumors and prevented their recurrence more effectively than chemotherapy alone."


FDA Clear's Vermillion's OVA1 Test to Determine Ovarian Cancer in Women with Pelvic Mass

Lab test that can indicate cancer prior to biopsy or surgery. Uses 5 assays in combination to determine whether a women should be referred to a gynecological oncologist.


Tate Creek Junior Donates Hair

The story of a 16 year old young lady from Kentucky diagnosed with Ovarian cancer.


Cyclist Rides to Fight Grim Cancer Prognosis
This is a special story for me. Ken and I were the New Jersey Delegates to LiveSTRONG Day in Washington DC in 2007 as well as LiveSTRONG Summit 2008 attendees. I have written on this blog previously about his Foundation - Cecile and Ken Youner Fund for Cancer Research.


LiveSTRONG

Dee
Every Day is a Blessing!

Thursday, September 17, 2009

NJ's "super" Super Luncheon














Today I attended the Super Luncheon in NJ. The luncheon was sponsored by the Ovarian Cancer Research Fund (OCRF) which raises funds for ovarian cancer research.

Survivors and advocates from throughout the state were invited to Drumthwacket, the Governor's mansion for a luncheon . Gov Corzine was not available to attend the luncheon and missed a wonderful event. There were a number of state representatives and state Senators in attendance including Barbara Buono from my district. Susan Bass Levin , ovarian cancer survivor and former Dept of Community Affairs Commissioner and current Deputy Executive Director of the Port Authority of NY and NJ spoke about her cancer experience , OCRF and the good work done by the "TEAL" organizations in the state to raise awareness and funds for research. We watched a short film from OCRF and then heard my gyn-onc, Dr Lorna Rodriguez, talk about the lastest in OC research and the clinical trials that are ongoing at CINJ. L'Oreal provided gift bags containing Hope cosmetics , a book mark and an OCRF band.

It was wonderful that so many survivors , advocates and representatives from Ovarian Cancer organizations in the state (many of whom are my friends) got to meet each other and celebrate the Ovarian Cancer awareness that has increased across the state. Now for a cure!

Livestrong
Dee

Every Day is a Blessing! Today I was blessed to be in the company of so many wonderful women whose mission is to find a screening test and a cure for OC.